r/scoliosis

they said they will put a new hardware but they will have to remove that too if the infection ckmes back, and that will make my scoliosis come back, and there wjll be nothing to do about it.

i feel incredibly unlucky and cursed and i don't know how to cope, did anyone else have similiar expwriences?

T8-L5, M19.

edit: i wanted to add that i already did 6 weeks of antibiotics with a underskin debriment in hospital and my back kept dropping serum after just a few weeks of being out of the hospital, them abd my surgeon believed my infection was just jnder my skin but i went to a more serious hospital that is focused specifically on the spine and they said they are convinced the jnfection is on the hardware and now i need to do exams, sorry for my english.

Lumbar fusion just below the curve only

After VBT denial for my 22YO daughter, surgeon proposed Apical fusion. ( which will prob get denied as well). Decided to get second and third opinion. Renowned surgeon at top hospital reviewed her mri and EOS bending X-rays today. Noted her Thorolumbar curve from T11-L4 with sadly some degeneration at L4/L5 and bulging at S1, asked her a ton of questions and proposed the following:

Fusion only at L4/L5 and S1 which he believes will also correct the curve from 45 to 30. To test if all the awful pain she has suddenly started feeling after starting a career and sitting at a desk for 8 hours is coming from those degenerating discs, he suggested an epidural shot in L4/L5. If pain is reduced would prove pain is coming from discs below the scoliosis, not the curve! We would then proceed with the fusion at L4/L5 and S1. Asked him about addressing the curve he thinks maybe when she’s in her 50s she may have to have some instrumentation but for now it should be fine.
I am blown away. Another appt with another top surgeon later this week and hoping he proposes same…

Anyone ever try this approach?

How important is it to have a strong core before this surgery? Non athletic individual but going for PT and massage right now.

I had my fusion (Cotrel Duboset) in 1987. I’ve developed severe osteoarthritis above and below my fusion. I’m seeing a specialist at the spinal center at UCSF, but they will only discuss my spine in segments - one appointment for cervical, one fir thoracic, and a third for lumbar. I’m struggling finding a doctor who will talk to me about my spine as a whole and help me navigate the issues created as a result of almost 40 years of a fused spine. Anyone else with similar issues? Any specialists you like in the SF Bay Area? Thanks

I am thankful to have had an overall highly positive outcome to my scoliosis fusion, but my most persistent symptom is large portions of my back that are cold/clammy/numb all the time.

I'm over 15 years out from my surgery now, but the symptom persists and has been permanent - there's a portion of my back that is always a different temperature, and it cool/clammy to the touch.

I don't know the technical term for this (assuming there is one) but curious if others share this or if it's a weird/uncommon side effect!

Hello, I’m new here.
My daughter started out last year with a 10 degree curve so it had been monitored every six months. After three appointments six months apart the dr was hopeful that it was so mild that she would grow out of it. Well this past appointment it showed 17 degrees after an 8 month gap from appointments (dr wanted to space it out since there was little change ).
Now we will be going in three months and I wanted to know what I could do to support my daughter. She currently does gymnastics, and will be starting cheerleading soon. She’s very active. She does not complain of pain yet. The curve is starting to be an S shape. I am scared for her. Any help or advice is appreciated. The de said that curves at 25 degrees receive a brace.

Hey guys!! I had spinal fusion 2 months ago to the day and havent taken any medications in over 2 weeks and am doing great considering.

However the only thing that’s bothering me is the weird feeling in my left shoulder and arm. It’s kinda like that feeling when you hold your hand up for too long and you lose blood circulation. But instead, its in my shoulder/ just under it, and a little bit down my arm. I only get it when sitting/standing for long stretches of time.

Does anyone else have this???

I notice my entire abdomen is quite achy and sore when my back hurts (60 degree Cobb angle) because I am a cashier and literally stand on my feet for 8 hours at a time.

I feel awful. I constantly compare myself to my peers who don't have a belly or scoliosis. According to the BMI chart, I actually have a weight deficit or malnutrition, yet my father tells me that I'm fat—which hurts worse than a stab in the back. I go swimming every day, and I am constantly seeing peers who are better than me. I'm the youngest of everyone here, sorry if you don't understand anything, I'm bad at English.

I know the healing process is different for everyone, but when did you feel like things were getting better? I’m on day 4 and feel so much worse than day 1… im trying to stay positive but right now I don’t see a good reason to

Hiii! So I'm a highschooler who's going to get a Boston brace next week and I suddenly got really anxious so I just really needed to get these questions out lol

My main concern is how to handle the heat HAHAHA. Since it is a hunk of plastic, I expect to be really hot in it, and I live in a country where we only get heat, a few weeks of rain and slightly less frying weather, then back to heat. So it's going to be a big struggle trying not to overheat and sweat like a faucet, especially in school where I can't wear 2 layers of clothing forever. Does anybody have any tips for that? 🥹🥹

What else should I expect when I start bracing? I already went through a handful of posts on here about what to expect and stuff but I still don't feel ready. Ik I'll never fully be ready and have the same experiences, but I still want to have something to expect, good or bad, just so things aren't so "well let's just see what happens"

Alsoo, what are funny reasons to give people when they ask why I brace HAHAHAHA. This is more just for me, scoliosis isn't really a known thing where I am. People just immediately think of a posture issue. I just want to mess with people, something sarcastic to not make them freak out and think I got injured or something lmao

Any of you ever gone tubing? Before or after spinal fusion. My younger brother, 14, is expressing interest in tubing, but we’re not sure all the bumps and sharp movements would be safe for him. What is your guys’ experience with tubing?

We’re obviously going to consult his doctor as well, so don’t worry.

yall, if i have 27 thoracic and 36 lumbar scoliosis curvature, realistically (most realistic), how many inches of my real height do I lose?

I have been so insecure of my body because of scoliosis, it was honestly devastating for me. I stopped wearing many clothes and I even stopped dancing.

I have been feeling so much better nowadays, i feel confident and I am back at dancing!

Hi im a 28y m ive had scoliosis my whole life. Boston brace from 6 to 11 then told it didn't work so had a spinal fusion and 3 years later had to have another because my spine started to twist, it had to be broken back into position. Anyway the point of this post. When I had a check up 10 years ago they asked about my mental health, I thought I was completely fine but now im not sure. I am so out going, I rock climb, run, sea swim and I live in a van. Most thing my doctor would hate but as I get older its hitting me about how being told "you cant do that" affects you. I want to know how people out there have over come the childhood bubble wrap that come with a going through this at a young age.

Thank you

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