r/SyringomyeliaSupport

Just wondering if anyone has heard of a syrinx causing any heart issues? Palpitations? Fast heart rate? Etc.

Been having symptoms for years, there doesn’t seem to been any visual cause in any of my imagining. Waiting to hear from a neurosurgeon now.

Hello! I was diagnosed about a year ago with a syrinx from T3 to conus. I was told it was stable and none of my symptoms were caused by the syrinx. My symptoms are chronic migraine, back pain and muscle weakness, dizziness, arms and hands go numb or tingly. Sometimes my toes with go numb or tingly. Hip pain. There is more but that is the main stuff. I do have lower lumbar scoliosis as well. I was diagnosed with that at age 12 and then the syrinx at age 38. I am happy to find this to connect with others and learn new things! I have researched a little about natural remedies for the symptoms but was wondering what has worked best?

I have chiari malformation and a potential CSF leak - 9mm herniation. I've recently started experiencing burning sensations, twitching/muscle fasciculations and a sensation that there is cold water gushing around my toes. These all come and go in my feet. Sometimes I get muscle fasciculations in other parts of my body too.

I noticed a couple months ago that I my skin is always red around the cervical area of my neck and am starting to wonder if I could have developed a syrinx. Do any of you get this type of skin flushing? See photo. There are some spider veins in the area too that I think are new.

I went to get an abdomen X-ray for my awful bowel movments and severe constipation. I'm extremely backed up. They noted "dextroscoliotic curvature of the lumbar spine". How bad is this? Does anyone else have scoliosis? I never knew but it makes a lot of sense. You'd think my gastroenterologist would note that constipation is common if you have scoliosis but nah. No doctors care about this condition.

Hi Everyone,

Just wanted to say I'm touched by how much care and kindness I see in the chats.🥰💞💫

Would love to hear what folks do to stay positive and healthy!

I have a syrinx from C5 to the conus, largest portions are 7 and 8 mm, near the top and bottom, with some problems with balance, strength and pins/needles sensations.

Didn't know about this diagnosis and I've worked in health care for over 10 years! Sorry I'm not alone in this. So good to know there's hope and a supportive community ❣️

I just got diagnose with a syrinx in on my C7 and T1. I’ve also been in a battle trying to figure out what is causing my chronic daily migraines and I was wondering if this could be the cause, even though the migraines are in my forehead area? I’ve never had any pain in the back of my head. The pain is in the front of my head, all days, every day. I have no other symptoms of the syrinx. It was only on a whim that the doctor ordered the MRI of my neck.

Just got diagnosed with a syrinx in the center of my spinal cord at c6. Is there any non-invasive treatment people have found any success with, like red light therapy and so on? I've been dealing with it for two years and i finally got an answer. I don't know the exact size, but it's small right now even though I'm getting a ton of symptoms and neuropathy. I'm just trying to find a way to make the symptoms bearable so I can sleep.

I was recently diagnosed with a really small syrinx, spanning 2.2mm wide from the T11-T12 junction all the way down into my conus. I believe it is just above 6cm long. On paper, it shouldn't be causing much issues.

However, the really weird part is I'm an incomplete paraplegic, which happened progressively over the course of years. For a while it was assumed FND due to my MRIs being prematurely marked as clear, and it was only upon new images at a new hospital was the syrinx and "severe facet arthropathy with ligamentum flavum thickening" (also at T11-T12) discovered.

Before this, my level of sensation was noted as around T10, so now both are presumed to be related to my symptoms. However, no one on my team seems to have an answer for me on how such a small syrinx could cause such huge issues and are seemingly back flipping between FND and structural causes of my paralysis, with some practitioners apart of my care team saying the syrinx isnt a syrinx at all, and just a dilated central canal.

I apparently have a presentation consistent with conus involvement (both UMN and LMN symptoms). Meaning in my case, absent reflexes and also severe spasms, for example. My entire back from around T11 down constantly feels like it put on pants several sizes too small, and I find it too coincidental that my "level of injury" is only a vertebrae above where this syrinx starts and the arthropathy (which was measured to be 0.8mm away from my cord).

Tethered cord was considered for me but, my cord ends on the lower side of normal but, not low enough to count. Ive considered asking about "occult tethered cord" since tethered cord and conus-level syrinxes seem to overlap but, as far as Ive heard is largely unrecognized in Canada.

Has anyone else had/have weirdly severe symptoms for the size of their syrinx?