u/BeginningSecret2465

Hello all,
I’m looking for any stories from people who had b12 deficiency symptoms but had NORMAL b12 serum & active b12 results

But did injections or supplemented b12 and recovered or saw great improvement.

Please do not respond if your bloods showed b12 deficiency. I’m looking for stories specifically from people who had normal bloods but still turned out to have functional b12 deficiency

32 year old male here in UK
I’ve had 10 years of symptoms basically unexplained by the NHS or brushed off as Fibromyalgia, Chronic Fatigue Syndrome or Functional Neurological Disorder.

- Head pressure
- squeezing sensation left temple
- feeling like vein or artery is inflamed left temple
- derealization / feeling spaced out
- neck ache
- feeling head too heavy for body
- off balance
- feeling like movement not natural/requiring extra focus
- social anxiety
- anxiety in general / easily startled
- fatigue
- vivid dreams like watching movies in my head all night
- itchy cystic acne on back

Had every kind of blood test and scan going on NHS, including MRI’s with and without contrast, tested for TMJ, seen multiple neurologists, rheumatologists, other kinds of specialists

Went down the Lyme disease rabbit hole due to people saying the tests are inaccurate and did antibiotics for a year with no difference better or worse so stopped to try and avoid antibiotic resistance.

Just desperate for any kind of answers and relief to live a normal life.