Tethered cord and neuromuscular clubfoot
My daughter is 2 years old (32 months). She was born with tethered cord + dermal sinus tracts and had surgery when she was 6 days old because her lower back was basically open and we couldn’t risk infection. Even though she’s still having major issues with bowel movement, her bladder and low muscle tone, strength, sensation issues, etc, she’s come a far way 🥺💕
My question is about her feet. Without her AFOs on, she can't keep her right foot flat. She stands on the outside of her right foot. Both feet also turn inward, although that's actually improved a lot compared to when she first started standing/cruising. They used to cross over each other and she'd trip all the time, but that part has gotten much better, and she’s not wearing twister cables anymore. Has anyone else's child been like this? Did it get better as they got older? Did therapy and braces make a big difference, or was surgery eventually needed?
I know every kid is different. I'm just looking to hear from people who've actually been through it because I haven't found anyone talking about this specific issue. She also has a huge bunion on that side of her foot.