I just a lumbar MRI to evaluate for TC.
Is the test usually supposed to be done in a supine and prone position?
I was supine for the entire scan( it lasted approx 7 minutes).
This imaging is going to be forwarded on to a TC specialist for review.
I was born with a lipoma tethered to my lower back.
I had the first surgery when I was an infant, the second when I was in middle school. I had to re-learn how to walk and have been gradually losing my ability to be ambulatory since middle school. Especially after covid. I turned 18 in 2020, everything was so complicated I never thought about reaching out to the big city hospital that handled my surgeries until somewhat recently.
They are struggling to find my records, no local doctors even really know what tethered Cord is.
I need serious help trying to figure out what this i need to do to improve, and live an adult life with severe tethered Cord.
I'm taking adaptive driving lessons but my hours just got approved and my surgery is within 2 weeks. I'll probably schedule my driving dates after surgery or half before half after, but I'm not sure how long after to schedule. I'm hoping for a ballpark so I can schedule (and if things change I can always reschedule)! Thank you!
Hi.
Sorry for any misspellings, english is not my first language.
In the spring of 2025 my daughter went through surgery and had her cord detethered. The nerves attached to her bladder was entangled in the small lump of fat, I can’t remember the name. So the neurosurgeon did not touch that but all in all the surgery was a succes.
Since then she has experienced a tingling sensation in her left buttock. It does not stop when she scratches or moves. I’m pretty sure it is one or more nerves but I don’t know what to do. Today she cried about it because it came with only a few seconds in between. Some days hours go by without any tingling, other days it is almost constant.
I was considering calling the neurosurgeon but wanted to ask if any of you ever experienced anything like this and if you have any advice?
Thanks in advance.
Hi all! Not looking for medical advice of course, but I would love to hear experiences of those with occult tethered cord.
I have May Thurners ( treated with a stent), pelvic congestion syndrome( treated with foam), dysautonomia ( NCS) among others and am not experiencing pelvic pain relief after a stent. I am doing diagnostic testing for lots of things to see if something else is going on. I got a back MRI and Dr. Klinge reviewed it, negative for tethered cord. My care teams for May Thurners ( MIPS in Denver) wants me to see Dr. Klinge in person but it will be pretty inconvenient to see her in person and I have no sense of how likely occult tethered cord is. I can’t see my care team for a while to ask questions.
Those will occult tethered cord, what are your symptoms?
What does everyone here do or take for your severe pain related to tethered cord? It's becoming unbearable and I don't know how much longer I can take this and keep fighting to get out to my doctor appointments to get the help I need. I'm just suffering constantly