u/corvidpunk

I'm taking adaptive driving lessons but my hours just got approved and my surgery is within 2 weeks. I'll probably schedule my driving dates after surgery or half before half after, but I'm not sure how long after to schedule. I'm hoping for a ballpark so I can schedule (and if things change I can always reschedule)! Thank you!

hi, i'm curious to those who are diagnosed with bipolar. how do your manic episodes look like with ME? whats your severity, does it change after/before having episodes?

So my psychiatrist determined I am hypomanic when I saw her Thursday because I told her how my sleep meds haven't worked and I stayed up over 24 hours last week and that my gf and her mom noticed my large eyes and lack of sleep but heightened energy, and my psych said I was having pressured speech, and also told her about how I have been skipping my meds, having SH thoughts, thoughts that people are mad at me, and thoughts about running away. I am not actively in any danger and we agreed that I have a good support at home but I need to sleep and need to take my meds so things don't get worse...

But it's like, I know how to circumvent my safeguards and I can verbally acknowledge something is wrong and logically think. I KNOW this is hypomania textbook, my psych and gf can see it too, its not just me. I don't know how I can admit this to my psychiatrist and yet i just look at my pills and it makes me sick to even try to take them. i just feel gross and skin crawl-y when I try and take them. I know that they will help me not feel like this, that this is my bipolar speaking, that mania is destructive and bad and dangerous and destroys my brain, and that by not taking them i can make this worse, etc. and it's STILL impossible to force myself to medicate myself or sleep at reasonable times.

I've also been having impulsive thoughts especially revolving around running away.. driving into the mountains and hiking into the forest or going on a train or a bus... I dunno, it's so scary driving because it gets soooo tempting. and then having these delusional ass thoughts like my meds are bad and obviously my psychiatrist is bad because she's trying to make me take them. I KNOW they're untrue bad thoughts, false and not even making sense in reality.

Its like I can explain to my brain the logical things, but it wants to keep trying to convince me of these delusional things or to do these impulsive/unsafe things. And it feels like my body is preventing me from taking my meds like. I hold them and I can't take them until I remove my psych meds from the mix. I don't know... I cannot be having a manic episode right now tho lol and I know I need to get it under control but I can't. Is this just me wanting to have an episode??? I don't know. I dont knowww.

i have therapy tomorrow and my brain is telling me to tell my therapist, that he can help me figure this out and how to help me... but also telling myself not to tell him and pretend things are fine or to just do whatever i want because i'll go elope and run away right after anyways. idk idk!!!

Does anyone else get like... lucid but manic/delusional at the same time???

curious about this. has anyone done emdr for their medical trauma? how did that go, did if affect your health in any way?

Hi all, I'm just wondering how you guys deal with a neurogenic bladder!! I'm AFAB and I did a urodynamic study. I had positive EMG on it, just a little. The study showed that I can't hold a lot of pee before my body tells me to go, so probably over active bladder, and i also have possible (?) retention where after I pee, I feel like I still need to pee more but it takes anywhere from 10-30 minutes to pee in short bursts before I feel like I've fully emptied my bladder. I use a squatty potty stool and try to do the breathing my PT and urologist taught me. Still takes me forever to pee!!! I hate being stuck in public restroom, trying to pee. sometimes I give up but then have to go back in 5-10 minutes to pee a little more. Ugh idk how to deal :/ so much of my life in the bathroom!! and I pee so often everyday too :/

What can I do to help this?? Do I just wait and hope my detethering surgery will fix it?

Hi! I've been wanting to find some new cafes around town as I've been away for a few years. I really like cozy warm-lit cafes, like Alley Cat, which was one of my favorite cafes when I lived here last. Except now I'm in a wheelchair full time and can't go there obviously... So I am wondering if there are any cafe recommendations people have for me, my 2 criteria being:
- Must be cozy (via whatever your definition is!)
- Must not have any stairs or steps!!!

Bonus points for:
- Good food/pastries
- Good tea or non-coffee beverages
- Sugar free syrups
- Non standing height counter / normal table size counter to order from lol

It sucks wasting my time and energy going somewhere only to find they are inaccessible, but unfortunately lots of businesses don't list their accessibility online or don't realize everything is accessible except for the front step in the door... Thanks for your help :)

Saw a neurosurgeon who specializes in CCI and thankfully we agreed that I don't need a fusion yet. I am pretty much doing all that you can do for CCI; specialized neck/CCI physical therapy, neck braves (hard and soft, and only when hurting to not overly rely on it), pain medications (high doses of nerve pain meds and muscle relaxers), ice/heat, trigger point injections, and other symptom management. Since I'm pretty much doing everything I can, the only thing the neurosurgeon could recommend to me was to see a NUCCA certified chiropractor.

I've always been kinda against chiropractic medicine (for myself!!! love it for the people it works for but it's not for me) because of my hypermobility and the knowledge it has caused other people's CCI/other spinal issues to worsen. i also have occult tethered cord so I don't know how well i might do....

however, receiving this knowledge from a doctor that a NUCCA certified chiropractor may be okay and helpful for me to do, I wanna hear other people's experiences with it and if they'd recommend it!

anyone have a emg and have it be normal?

got appendicitis and have been too exhausted to check my phone. sorry peep for losing our streak :(

I keep seeing people say they've avoided PEM for X amount of time or knowing their triggers that cause PEM, etc. but I feel like I have no idea how to pace or when id a sign I'll be triggering PEM.

I go out for a day and then suddenly my lymph nodes are swollen and throat scratchy and coughing, feverish with body aches. It just hits me. Even with my crutches, I was very active before being in a wheelchair (from TCS) and now with my custom and power assist, I want to go out and use it lol, but I can never tell where my threshold is, because I feel the same all day until it hits me. Maybe it's because of my disassociation or autism or brain fog or the weed I smoke for pain lol? I don't know.

How do I track my pacing? So many of these apps require expensive subscriptions, or are very complicated to use. I've had ME since I was 17, I'm 23 now, and I was moderate-severe when I was 17, and I've just been doing whatever I think I can handle that day and regretting it some(most) days. Help please :')?