u/corvidpunk

▲ 58 r/finch

lost longest streak because of hospital admission :(

got appendicitis and have been too exhausted to check my phone. sorry peep for losing our streak :(

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u/corvidpunk — 24 days ago
▲ 6 r/cfs

How do you gauge pacing?

I keep seeing people say they've avoided PEM for X amount of time or knowing their triggers that cause PEM, etc. but I feel like I have no idea how to pace or when id a sign I'll be triggering PEM.

I go out for a day and then suddenly my lymph nodes are swollen and throat scratchy and coughing, feverish with body aches. It just hits me. Even with my crutches, I was very active before being in a wheelchair (from TCS) and now with my custom and power assist, I want to go out and use it lol, but I can never tell where my threshold is, because I feel the same all day until it hits me. Maybe it's because of my disassociation or autism or brain fog or the weed I smoke for pain lol? I don't know.

How do I track my pacing? So many of these apps require expensive subscriptions, or are very complicated to use. I've had ME since I was 17, I'm 23 now, and I was moderate-severe when I was 17, and I've just been doing whatever I think I can handle that day and regretting it some(most) days. Help please :')?

reddit.com
u/corvidpunk — 29 days ago