u/BespokeBowtie

Anyone post long fusion wish to share their workout, sports, activities please?

What did you do before? Can you still after? Or no? Maybe in a more limited basis?

I have to confess my spouse took up BMX racing and I am dying to give it a shot - not even saying competitive racing necessarily but just some laps around the track? Like I said am dying to try but too afraid without some guidance and others experiences. I will see my doc next week to ask….

Personally I’m a t1-si fused 40 yr old female. I am due to have another series of surgeries in the next month so maybe I can get a chance to try before that…

Best of everything to everyone here!

Untreated juvenile idiopathic scoliosis. First fusion at 38 nearly killed me so badly was it done. Next fusion t1 or t3 for some reason I can’t remember tonight to hip anchored seemed to fix it for 3-4 months. Now it’s failing at the top of the construct. Head and neck hunched forward and pain returning. I still have yet to return to work from after the first one. I’ll be 41 in July, so it’s been a ridiculous length of time to not have an income. I’m still unable to either sit or stand for any length of time nor am I able to walk any distance without feeling like I’ve been running a marathon. I realize there might be a job in theory I could do, but I’m just worried. Especially cuz it’s looking like #3 is right around the corner - what’s left to fuse right? Just my remaining bit of spine to skull. Really worried on that one. Recent diagnosis of lymphedema and have KFS and a few other documented chronic conditions. Would I be a candidate for disability? Is it worth looking into? Anyone’s experience, advice, comments, etc very welcomed!