r/LongSpinalFusion

Am I getting permanent damage in my leg?

F(27), 175cm, 61kg, no smoking, no drinking,
Long fusion at the age of 13 (th5-L4) due to double scoliosis, marfan syndrom (I take Borez 5mg, Lorista 50mg for the heart)

Im experiencig siastica from the age of 14. Fixed it by regulary working out in 2023. Pain is due to cyst pressing on my nerve L5 to the right and narrowing of the spinal cannal.
I stoped working out and it came back in 2025 but in a much worse way. I got additional pain - burning, dull ache, tightnes. I stoped going to work (Im home for 5 months now). I did 4 rounds of antiinflamatory drugs (Nalgesin 550mg) with some exercises and physical therapy. After a while the drug did its thing and it got better. But after I stoped taking it, the nerve would be iratated again in a few days…

Recently I stoped with the drug again. Fine for two days. Then it came back. First it was just insane tightnes in my back, dull pain and electricity.
I started to do gentle activation exercises and walking a bit.

On 23.6.26 my whole bottom of my right foot went numb, after that my foot was super sensitive (it feels as if I am walking on glass) and its only getting worse. Its spreading higher and now bothers me during the night - before if my leg was still and not touching the ground I didnt feel it as much.

Why did this happen and will I eventualy stop feeling my leg all together?

Thank you for help

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u/spine_less0 — 7 days ago

▲ 7 r/LongSpinalFusion

Help!

Hi everyone i(21F) recently got spinal fusion done 3ish weeks back from t4-l4 for my idiopathic adolescence scoliosis.

Could people with successful spinal fusion give me tips and tricks on how to manage the pain, gain mobility again, how to reduce stiffness and all.

And any other tips you guys would like to give .

What should I do and what should I not

And also if anyone can tell is it common to get another spinal fusion after some years

And also does the spine curvature comes back after surgery?

( i had thoracic 75⁰ and lumbar 58⁰+)

Thankyou

u/Disastrous-Brick-665 — 12 days ago

▲ 6 r/LongSpinalFusion

Broken Rod

I ended up in the Emergency Room for something unrelated. When they did a CT of my abdomen, this broken Rod was discovered at T10, right below the cage that replaced T8 and T9.

I see my spinal surgeon on July 16th. Anyone experience something that looks similar? I already have PTSD from the first surgery which has turned me into a recluse. I am horrified at the thought of a full revision.

Original surgery performed March 2023 for a 80+ Degree Kyphosis due to Scheuermann’s Disease. T4-L1, T8/T9 replaced with a cage, and T7-T10 laminectomy.

u/Relative-Rutabaga-23 — 12 days ago

▲ 7 r/LongSpinalFusion

Problems with long spinal fusion of 15 years

F(28)
Fusion Th5-L4 due to duble scoliosis

A year after surgery I started experiencing siastica every second day. At the age of 23-25 I started to workout and that helped a lot with the pain. I worked in a restaurant from the age of 27-28 (I know the worst idea ever with a back like that)
Now I am experiencing pain again but it is much stronger and doesnt seems to want to go away (I am back into working out with a specialist and doing therapy) but on a sick leave for four months

This got me thinking - is it only gonna get worse? I have a bit of the uper back and lover back still moveable but this parts work extra hard and are getting used up a lot faster

Do you have any problems like that?
And is anybody here having even longer spinal fusion?

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u/spine_less0 — 14 days ago