We have set up Apple screen time app limits on our son’s devices.
Everything works fine as expected on his iPad and iPhone but on the MacBook and for Roblox only the app limit is not working.
The Roblox icon shows as greyed out in the hot bar but it doesn’t actually block the app.
I have tried resetting all limits from the MacBook itself, restart, etc - nothing seems to fix this
TLTR: if you dose at bed time do you still see regulation the next day? Or do you notice it wearing off the next day?
So our goal is emotional regulation during the day and at bed time where we often have issue.
We have started with 1mg in morning and then went to 2mg and played with timing but it seems to cause bedtime agitation
So now we are playing around with 1mg in the morning and a second 1mg later (we tried anything between 3 and 6pm).
And the issue is that he falls asleep later and later (11pm when we aim for 8pm) and some nights he gets super agitated too
I think it’s really working during the day so I don’t want to give up on it but the bedtimes are just horrendous
Ok we are adding another one to the mix in the hope we can nip that anxiety in the butt. (Boy 10)
It’s been such an exhausting and emotional journey to date trying different things so please share your success stories with me. I need to hear that this can work and there is hope 🙏🏻
TLTR
Sertraline wasn’t a good fit
Concerta and Intuniv is helping with regulation to a degree
Clonidine and Melatonin for sleep
But anxiety is still a big issue and stopping him from going to school and fight / flight melt downs
It’s been over 3 months since diagnosis (boy 10) and we have tried stimulants, non stimulants, SSRI, therapy, a combination. We see glimpses of hope and then things go downhill again.
Recently had 3 good weeks on Concerta and Intuniv 1mg.
Went up with the Intuniv to 2mg and a full week of horrible bed time agitation again and he doesn’t sleep till 10-11pm!
He hasn’t been to school at all in months!
Our number 1 problem is disregulation and that seemed to be addressed in those good weeks but it still wasn’t enough to get him back to school either.
I am honestly starting to lose hope a bit.
Will we ever get back to a normal life again