u/Born_Stage4713

Does anyone feel like ROs are least compassionate oncs you've met? I've now met two and I did not feel as emotionally held as I have by my surgeons and MOs. They were both smart and clearly good at their jobs, but I have left both appointments wanting to cry because I don't feel seen as a person. My MO takes it very serioursly when I talk about long term risk to my standard of life, but both ROs have been like: you'll be fine, you won't have long term side effects.

That feels off to me. I want to feel respected for the risk I'm taking. Or at least some cheerleading and acknowledgement that this is scary? Legitimately scary. That a 1 in 10 risk of long term lung effects is REAL. One RO told me "Radiation won't make you glow in the dark." I was all, yeah, I know that. Could we talk about actual risks? And can you hold some emotional space for me as a person???? Is that really too much to ask?

Hi - getting second opinion tomorrow about post SMX, post chemo RADS. What do you wish you had asked before treatment? What do wish you had known before hand? I had negative margins, but narrow, so bolus is recommended for 3 weeks of treatment, and I'm nervous about skin damage.

So I've kept 85% of the hair on my head during TC. But after round #3, all my pubic hair is gone. I've never had a full wax in my life. And now I spray everywhere when I pee. Somehow it even got on the floor. (Just why??? Why?? Why???) HALP! Breasties with no pubes, how do you pee neatly?