I guess I’m in kidney failure! Pretty anxious - specifically about food
Hi all. Little back story I’m a 30yr old woman with a 1yr old baby. I went to the ER cause I thought I had a bad flu, turns out I am a complete medical mystery. We’re about 5 weeks into a billion blood tests, scans, biopsies and specialty doctors and still, no one knows what’s wrong. BUT we do know based on my kidney biopsy that whatever it is has been happening for a while and 70-80% of my kidneys are scar tissue. My egfr is sitting right around 30 right now. My nephrologist is hopeful that figuring out what’s wrong could regain me a TINY bit of function but said he expects I’ll probably need dialysis and a transplant in the next 10-15 years. He also wants me on a low sodium and mostly plant based protein diet from now on. And soon (once I’m done breastfeeding) I’ll be going on Losartan and he’ll be putting me on a low potassium diet as well for at least a couple weeks, I guess. My husband and parents have been very supportive which is so great. But idk…I think I struggle cause it’s hard to constantly be told to be positive by people who aren’t personally facing all of this? Idk if that makes any sense. I am also feeling intensely anxious over the food situation. I find myself freaking out about any and all sodium now and if I eat something that I know has sodium I feel so guilty. I think any thoughts, advice, messages of “yeah this sh** sucks” or whatever from people also going through kidney failure could help. Idk what I need honestly, I’m just feelin some sort of way
If you made it this far, thanks for reading 🫶