r/kidneydisease

I currently take Jardiance but Farxiga has generics now so my nephrologist is switching me to the Farxiga generic starting tomorrow. He says it’s the exact same type of drug but I assume there has to be differences that the manufacturers advertise to sell more than the other. What are those differences? Anybody ever have the same switch from Jardiance? Just wondering about Farxiga side effects, I’ve had none the 2.5 years on Jardiance.

Edit

I have stage 1 CKD from high blood pressure and Type 2 diabetes, diagnosed 4 years ago, so far meds and radical change of lifestyle have kept me at stage 1. I’m also on Lisinopril and Metformin

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EGFR of 98!! I had my transplant on the 22nd of May. 21M, my dad was my donor. I'm a little upset by the weight gain, but I'm working on it. Just wanted to post in case someone needs some positive reinforcement regarding an upcoming transplant :)

I’m sixteen, i was recently diagnosed with FSGS. like a year ago. And i’ve been struggling with both the mental and physical side of the diagnosis.
In the beginning i initially thought i was just a bit ill, maybe a tad lazy but just sick. and now it’s finally settled in and ive been neglecting myself ok forgetting basic things like brushing my teeth more often then not forgetting to take the meds for it.
is there any technique others have used to start a routine or just a way to remember to do the necessities every day.
i don’t know why i keep blanking on it, i walk past them and sit next to them for hours a day but it’s like i don’t register their existence. any tips would be amazing

Stage 4 kidney failure, caused by high bp, pre eclampsia, eclampsia and pregnancy.

My Dr said based on the biopsy results, they’ve estimated at least 60% of my kidneys are completely scarred

I’ve now been prescribed losartan in addition to..

10mg amlodopine
12mg doxasozin
50mg hydralazine (to be dropped when my BP is stable on losartan)

Losartan to be increased by 25mg until I’m on 100mg, then I’ll start on dapagliflozin

Looking at transplant within 5 years (give or take - if my kidneys are more than 60% scarred they’ll drop quicker)

My mom is 78 and her last eGFR was 14 taken June 1st. She is also bipolar I and a long-term lithium patient. She is recently off lithium and on new meds but it appears that she is in cognitive decline and is experiencing psychosis (agitated and confused). She's only had dialysis four times in the last 2 years. She hates it and said she didn't want it ever again. I really don't know if doing dialysis at this point is going to help her regain her cognitive function. Does anybody have experience with this situation and can share?

Just went to the movies and ordered a small popcorn and small soda. Drank half the soda.

😮‍💨. I have two transplant donor s in workup and am almost through testing myself.

But 🤬 man I really want a large ice sprite. I miss being able to pee it out. I don’t urinate anymore.

How do yall deal with liquid cravings?!? I manage 4.5l in 2 days. But today I overslept, was late to dialysis and only got 2.5l.

How was it?

I will never forget mine because I was sick for about half an hour after it. The nurse told me don't worry its normal.. I was being sick and shouting back 'this is normal' lol. My body had a reaction to it. I never had a problem after that with dialysis 1 year at hospital and 2 years at home doing HHD before I got my transplant.

It’s itchy all the time, even after the dialysis. Is it from kidney disease? I take a lot of different medications as well morning and bedtime.

Phosphates are a common additive in frozen produce. It's safe unless taken at high concentrations.

We use phosphates to cryogenically freeze food for transport. Wheras 1 source of exposure may be manageable, sodium phosphates are common across industry bevause it's cheap.

Think of the impact of eating sodium phosphates in many different ingredients in the same meal, multiple meals a day.

Thoughts?

My results show mild igA Nephropathy, nothing currently active or super serious it sounds like.

My other dx is "stage 3a chronic ckd" as my egfr has been in the 40s to 50 for the last 8/9 months.

Only taking losartan 12.5mg for under a month now, but will wait to see what nephrologist has to say going forward.

I already have one autoimmune disorder(ulcerative colitis) so I've been waiting for another one to crop up lol.

Happy to have an actual answer, now just trying to take it easy as I recover from the biopsy from Wednesday.

I am 27 Female 5'1 117 lbs

On 4/11 my result was 116. In May exactly a month later it was 75. June it was 71. I've been having progressimg symptoms since May.

I know that's not super low but my nephrologist never mentioned that or my blood sugar being at 57 (completely different medical issue I'm assuming I'm just sayin). I was referred by my primary because these were slightly more off than last time: Chloride (high), Carbon Dioxide (Low), creatinine (high), protein in urine (trace), UTI ruled out.

Now I've been having more concerning symptoms (since May, starting to effect my life now). I'm peeing once a day (maybe twice) and when I do it's clear no matter my intake. I have pain all over including my sides and back. Recently my energy took a nose dive. I pretty much feel stuck in bed taking 30 minute naps over and over. I tried going to the park but it took everything out of me and I ended up having an accident (peeing myself out of nowhere) My vision is blurry, and everything I eat or drink tastes bad. Past two nights atleast I've had night sweats. I have zero appetite. also have been getting more headaches and more confused. I almost scared a little old lady by trying to break into her room! I didnt realize I was on the wrong floor of the hotel! My muscles also twitching all over

I am always cold but ive been feeling warm. I go back and forth. Like id be laying down then like a sensation of warmth would come out of nowhere and I'd feel more confused and out of it.

Im not home at the moment. I'm in North Dakota and I fly back home the 10th. Im getting pre-op done on the 14th because I'm getting a polyp removed from my uterus, so I imagine my functioning will be tested again. The nephrology also gave me another lab order before saying see ya next year bye. He also ordered an ultrasound said that was clear nothing found. Another thing I have no swelling or edema but I've been losing weight

Should I be concerned or would that be overreacting?

TL:DR: Nephrologist suggested I need to start researching dialysis. What should I expect with the ability (restrictions) to travel.

I'm just trying to plan my future. I'm 67M. I have very well controlled diabetes (15yrs) and hypertension (50yrs). I also have stage 4 CKD. I've worked hard on diet and exercise, maintaining a good weight (170lbs/6'1"), etc. On Ozempic (5 weeks) and Jardiance (8 months) for CKD/Diabetes

Two weeks ago I did my regular labs and though some numbers improved, my eGFR went from 23 to 18, my creatinine went up.

Had a phone appointment with my new nephrologist (only had a nurse before), and meet her in person in 2 weeks. In the appointment we discussed the possibility of dialysis. I'm doing my labs again in 2 weeks because she wants to rule out dehydration which is a possibility. But I'm on a trajectory in spite of medication and lifestyle changes (eGFR was 45 2 yrs ago).

ANYWAY... I travel regularly and backpacking is one of my life hobbies. I've backpacked (3-14 day trips) through Borneo, all of the US, Japan, Korea, Peru and most recently a 10day backpacking through the Alps. We have a 5 day backpacking trip planned in N. California this fall and a 10 day in Australia next year. I've lived in 4 countries, traveled to 43. Going to Germany this winter (Kristmarkt tour). It sounds like a humble brag (mayb it is :D), but it is part of who I am and has been since I was 18 and first traveled overseas.

I know that age someday will lessen the ability to do this, but I was hoping to push that off.

Because of this and after research, it seems peritoneal dialysis is the way for me. I'll confirm this with my nephrologist in 2 weeks.

I might be able to push it off for a while, but considering the trajectory of late, who knows how long.

What are your experiences with travel on dialysis? I am assuming that backpacking will be precluded the rest of my life, or at least high probability, but what are the logistics of travel?

What are your experiences? What accommodations do you have to make? What limitations have you found? Internationally? Domestically? durations? It feels like it would be a lot to travel with (cycler, fluids).

I've been wondering if RV travel and/or cruises might be an option going forward. I've done RV travel once for two weeks, and have only been on two cruises, but I've enjoyed both. Maybe shift to those.

I know even if I was healthy and had none of these issues, eventually this life would need to 'slow down'. Age is a thing. But I'd have loved to push it off to my 80s and 90s like my in-laws did.

(I did a search on the sub for this, not a lot of answers, though some were somewhat helpful)

Does anyone know why? I’m not on creatine supplements or have any huge muscle mass. Any ideas? eFGR is in 70s, I’m 27.

normal urea & protein. Just high creatinine.

I had NS when I was 3 years old up until I was 13 was the last time I relapsed. I’m 30 now and thank god I’ve been fine. Now I live a healthy lifestyle but even before then I was unhealthy and took vaccines, traveled the world but somehow my NS never acted up.

I’ve been reading stories here on how people whos NS went away for years then came back and some NS are on and off for other people.

Is there anyone here that had NS and completely went away and haven’t relapsed ever since?

I wanna know just reading other people stories about them relapsing after a long time worries me

I recently tried to stop eating animal proteins including sea food and I recorded a positive results for my egfr. It improved from 17 to 22 and my urea level used to be high but now it's within the range. My protein leakage was 55 but now it's 26. All this happened within a months diet.

I found out yesterday that I am at stage 3b for CKD due to the fact my blood pressure has been so very high now for a very long time. I have a cardiologist, an Oncologist and A Kidney Dr. I’m on 8 different medications trying to keep my blood pressure under control and nothing seems to be working. My mother had the same issue with her blood pressure before she passed away. My creatinine level is 1.77 and my egfr is at 34.
I know my kidney’s are permanently damaged and cannot be reversed, anyone have any advice in how to get my creatinine down and besides cutting sugar out, which, I don’t eat much at all of it. What can I do? I have severe back pain due to herniated disc in my lower back but I need some advice please?