Extremely concerning symptoms 26M
Desperately need some kind of reassurance because I’m freaking out. I honestly can’t remember whether it started in my upper or lower body but unless my symptoms were extremely subtle I really started to feel them about 5 maybe 6 weeks ago.
Unstable when I walk and weak around my lower legs but no foot drop observed. They fatigue easy and I definitely can’t run at my top speed no matter how hard I push.
As for my upper body hands and forearms feel weaker. Grip is definitely difficult and lots of clumsiness and it feels as though it’s getting worse. For example little tasks like opening my contact lens case, using utensils, picking up plates and bowls, etc. In the last couple days I noticed real muscle atrophy in my biceps. First in the right arm then the next day in the left. A gap in the muscle.
I go to the gym 6 days a week and I’ve been using that as a barometer to test my muscle strength/weakness and I haven’t noticed much weakness when lifting but I have noticed somewhat of a decrease in the muscle stimulus I’m getting on the right side of my body.
Whether it’s from stress or progressing symptoms I do feel soreness in the tongue also tightness in my jaw/cheeks/teeth. Swallowing and drinking doesn’t feel too off as does speaking except for one time when I caught myself stuttering.
Muscle twitches and fasciculations are brief and noticed all over my body. Affecting lower and upper body relatively frequently and now every once in a while in my face with the new jaw symptoms I mentioned.
I had an appointment with my neurologist scheduled for tomorrow but of course I get a call it had to be rescheduled to December. I have a primary care appointment on Friday 8/21.
The only crutch I’m holding on to is that I’m only 26 (no known family history either) and it’d be so rare to have ALS at my age. But I’m sure the others who were diagnosed in my age group thought the same thing. I understand Googling symptoms is the worst thing you can do but it genuinely seems all of my symptoms along with it progressing the way it is that I’m developing ALS. I certainly have no doubt there’s something wrong with my motor neurons.
Edit - Tongue feels sore and the legs + arms weakness is simultaneously worsening as of today