u/Careless-Muffin-7221

My husband, toddler and I are coming to stay in Beaverton for a week soon. This will be the second time we've been here, but we've since found out that our 2-year-old has a rare disease and is now an ambulatory wheelchair user. Basically, she gets worn out pretty easily and requires a wheelchair for longer ventures.

Other than Powell's in Portland, what are some inexpensive and accessible things that a 2-year-old would enjoy in the area? All three of us really like being outside, fwiw

If it makes a difference, we'll be there May 30-June 6

Let me start by saying I've been scouring this thread, watching videos on YouTube and TikTok and reading what I can, but it still doesn't feel like enough?

My 2-year-old (and 5 months, fwiw) gets her g-tube tomorrow. She has a rare mitochondrial disease that will require an overnight stay. Pretty sure we're going to be using the bolus and not the constant pump.

My biggest concern is pain for her. Outside of staying on top of medicine, what can I do to make her as comfortable as possible?

What are some things you wish you knew before getting yours/your loved one's?

How do you keep them from messing with it and/or fighting us on feeds?

What are the most important things to know?

Literally anything guidance you could provide would be appreciated. I just want to make sure my husband and I are doing the absolute best we can for her and not making this harder than it needs to be.