u/CarpetPractical5400

So my oconologist called me to tell me the bad news about my PET scan- bone mets ( tnbc). So stage changed to IV. What really bothered me is that at one point I’m not sure if she was crying or just all choked up. I asked her why she sounded like that and she said because she had to give me this bad news. I since went on Reddit and many told me its not a death sentence and many tools in toolbox to treat. These past few days all I can think about is the way she acted. She is nice snd I like her. The facility is world class so I wouldn’t question her competency but I do think its kind of unprofessional… or she doesn’t think she can help me?

I have a trip on my bucket list outside of the United States that I have always wanted to go. Now I have this issue ( tnbc bone met, troveldy.) At what point would I ever be able to go ? When I’m stable when NED? My dr said we will see maybe in one year if possible to pause treatment. Anyone have travel experiences?

I’m having one of those moments where I say what the hell this is too hard too much. Scan after scans, test after tests, biopsies etc. All those side effects and potential damage to other organs from all these drugs. I just got diagnosed tnbc bone mets. This morning I feel like saying bye to my oconologist and just pretend nothing is wrong as this moment I feel fine. I can’t believe you have to do so much just to treat it but not cure it. I know in a way I should be grateful as they at least have the tools in the toolbox to treat it unlike some other cancers but wtf.

I did all my research on keynote 522 thinking I had stage II or III but it turns out to be stage IV with bone lesions. Will be put on trodelvy and get bone biopsy. Can someone tell me what their experience have been for both?

Anyone with triple neg stage 4 met to bones with encouragement. Thank you in advance

My doctor just called me the PET scan showed bone lesions. I was stage II or III going in. Now its stage 4 MBC. I will have a bone biopsy then trovedy ( not sure if I’m spelling it right). How am I going to tell my family? I just got handed a death sentence.

I’m about to start keynote 522 ( tnbc.) Based on what I have read so far… there is a great possibility I’m going to end up in the ER at least once. Also the possibility of lifelong health issues with keytruda. I am having one of those moments where I feel like the treatments may be worse than the disease as I don’t feel anything right now. Any words/ stories of encouragement? Thanks in advance.

Starting keynote 522 soon. In my part of the world I have to take the subway ( mass transit ) to and from for treatments. Is this doable? I don’t have anyone to drive me. Has anyone taken the NYC subways to and from treatments?

I am just beginning this nightmarish journey of breast cancer. Stage 2 or 3 not sure till pet scan triple negative. I find out now that mammograms are really not that bad at least not as bad as all the procedures I have to undergo now including chemo. I also find out now over 80% of women does preventive screening. I did not. I thought I knew it all. Didn’t want to find something during preventive screening but what I didn’t take into consideration was the importance of catching something early. Well once done with the breast gonna ck colon, lung, Pap smears.. what else? Have a nice weekend everyone.

How long does it take for results of genetic testing results to come back?

I’m probably getting a little ahead of myself. I didn’t even get my chemo yet. But I’m curious what the steps are assuming things go well. Chemo, surgery then radiation.. achieve pcr then what? Unlike the hormone positive types you wouldn’t get harmone suppressed pills for 5-10 years.

I have a PET scan scheduled next week. The instructions say “ wear comfortable clothing that does not have any metal and any jewelry, including body piercings.” I have an engagement ring that I worn almost 30 years. I can’t seem to remove it. Help

There are 4 subtypes of triple negative bc. How do I know which subtype? Do you need genetic testing to tell? I have only done a biopsy.

I have a dog I absolutely love. Any tips on caring for him while I’m on chemo ? Don’t want an infection.

My major concern regarding chemo is infection. I heard even your own gut or skin can give you infection. I am embarrassed I have fungus foot nails. I don’t want that to give me an infection during chemo and end up in the hospital with sepsis. Help!

I will be getting an MRI this week. My Dr. told me I might consider taking a Xanax. Is it that bad? I did not take during my biopsies and was ok.

I got diagnosed beginning of the month. So far only my husband and best friend know. I have an adult son who is super close to me and is a sensitive person. In the past if I just wasn’t feeling well he would be very concerned but now cancer? I am truly stressing over this too.

Just received word triple negative. Any encouragement? Survival rates?

My biopsy is scheduled for Friday. Right breast near areolar area and under armpit with ultrasound guilded needle. Left breast with vacuum. Anyone have similar? How is the pain afterwards will I be able to go out for lunch next day?

I have read people undergoing chemo treatment goes back to work. Assuming you can manage but aren’t you afraid of infection when it can send you to ER?