I’m honestly at a loss and hoping someone here might relate or point me in a direction I haven’t tried yet.
For context: my doctor prescribed me Protonix (pantoprazole) about 3 years ago, and I’ve been taking it twice daily (morning + night) ever since. About a year ago, I started having this really weird symptom that has not gone away — I burp up this frothy/foamy liquid literally from the moment I wake up until I go to sleep.
I’ve told my doctor multiple times and have gone through what feels like every test possible:
stool samples
endoscopy + biopsies
CT scans
blood work (many times)
And every single time I get told: “you’re healthy, everything looks normal.”
But here’s the thing:
I follow a very strict GERD-friendly diet (super bland)
I’m active (hiking every weekend)
I take tribiotic + B12
I’ve had unintentional, noticeable weight loss
I want to say since December I've lost so much weight I went down I wanna say 2 pant sizes.
My throat now feels like it’s getting raw/shredded
Despite all that… the foam/regurgitation is still happening daily.
At this point I’ve started very slowly tapering off Protonix on my own because I’m wondering if it’s actually contributing somehow. But I’m doing it cautiously because I know rebound can be rough.
I just don’t understand how everything can come back “normal” when I feel like this every day.
Has anyone experienced:
constant foamy/bubbly regurgitation?
symptoms that didn’t show up on standard GI tests?
issues after long-term PPI use?
Or has anyone been diagnosed with something that didn’t show up on endoscopy/CT?
I’m open to anything at this point tests to ask for, things to look into, similar experiences, etc. I feel like I’m missing something and my doctor isn’t digging any deeper.
Thanks in advance 🙏