u/Charming_Tangerine21

▲ 3 r/mecfs

Hello my favorite subreddit. Im sure a lot of you aren’t feeling good, so before I start my vent I’d like to say that I am proud of you and I know you are doing your best even when others don’t see it. The work you are doing in your bed, in a dark room, or in complete isolation is very hard work. Only read this if you have the energy to spare.

A little back story, Ive had MECFS for four years, and have been moderate for most of the time. Just recently, its been alot more mild. Unfortunately, I need to work. However, every job ive had so far has sent me into rolling PEM episodes that have lasted atleast 6 months. Well, I just got this new job, which is very exciting because I’ve applied to hundreds of jobs already, and this is the first offer I’ve gotten.

Come to find out, after accepting the job offer, that they require employees to work 12 hour shifts 2-3 times a week. This terrifies me and i literally cannot stop thinking about it. This new job might kill me lol. But, it pays well for where I live (min. wage is $7.25 here, we dont have strict labor laws and we dont have unions) and i almost feel like i dont have a choice. I could suck it up and do it, until it slowly kills me. I could request accommodations (which they dont have to say yes to, because while they have to be ADA compliant i dont have the money to seek legal action.) Or i could quit prematurely, which i really dont want to do. I might just see how it goes until i just cant handle it anymore.

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u/Charming_Tangerine21 — 16 days ago