u/Cheap-Bobcat-125

Hi there, I have confirmed hydrogen SIBO. IBS-C for 20+ years. Multiple healthcare providers, gaslighting, the usual. Crazy headaches this year and inconsistent reactions to food. Unbelievable distention.

I realize no one has ever suggested MCAS, histamine intolerance etc. I asked my GI for a DAO test and was told no. So I went to an allergist yesterday and she scoffed.

I’m fed up. I’ve been uncomfortable for decades. She wouldn’t entertain it. But I realize today she’s not the gatekeeper of meds or treatments. I can get an independent test (though it looks expensive) and the meds are OTC.

How important is an official diagnosis? Are y’all just bootstrapping this?