r/HistamineIntolerance

After a long time searching for answers, I learned that my HI was caused by endometriosis.

I’ve know that I have PMOS (recently renamed from PCOS) for a while, but I never considered that I could have endo because I always thought you needed to have heavy, regular periods for it, but turns out nope! Some of the worst endometriosis cases actually result in light irregular bleeding. Now that the diagnostic criteria changed (laparoscopy is no longer required, diagnosis can be made by symptoms only) I easily got a diagnosis a few months ago. The key sign according to my doctor was that I had constipation that suddenly turned to diarrhea during the “gap” part of my birth control pill routine.

Been taking a low dose birth control pill (don’t listen to anyone who talks about “the pill” being bad — there are literally hundreds of options of varying dosages out there) for years but recently started taking it “continuously” (no gap weeks) and BAM. Histamine issues virtually gone.

I also no longer suffer from constipation or panic attacks now that my endo is getting under control.

I don’t get a period at all anymore. BUT it’s a myth that people even need to have one. For most of human history women did not menstruate like we do today — not having a period isn’t inherently unhealthy.

Just posting because I wish I knew all this sooner and hope it helps someone else

ENT: You keep getting steroid packs from urgent care for ear pain and fluid, but I don't see anything. I can't help you.

Allergist: Histamine dumping? Never heard of it. Every night between 8 and 10? No, that doesn't make sense.

Gastro: Your gastritis and GERD have nothing to do with your histamine. You have histamine all over your body.

Ok so time for a functional med doc? They diagnose everyone with leaky gut and sell you $100 in supplements, but besides that, give me your opinions. Thank you.

has anyone ever actually healed or mostly healed from this ?? i’m feeling hopeless that this is gonna be my whole life.

My DAO is very low, under 3 and I’m scared that histamine intolerance might be permanent in my case. DAO enzyme suppliment has no effect, but I only tried 2 brands.

I’m really curious whether any of you with DAO levels under 3 managed to heal from this or discovered the underlying cause. I’m still trying to figure out mine, so I’m open to suggestions. What tests should I get?

My thyroid and liver are fine. I do have borderline inflammation in my intestines, right at the limit. I had very low vitamin D for like 6 years, couldn't get it up at all. Now my vitamin D it's finally at 33, but still not optimal.

I had a lightbulb moment for me yesterday with my histamine issues. How much histamine symptoms mirror shame. I’m tapping into and recognizing how many situations in my life cause me to feel shame and I’m curious if this feels like something to anyone else?
I can think back to when I first started feeling my histamine issues and it was at a time where a boss was verbally abusive and I felt shame almost daily from the comments my boss made.
Anyone else find emotional or spiritual connections to histamine intolerance?

The natural sunscreen I used to use with no reactions is no longer being made anymore. Of course, right??

So now it’s summer and I don’t know what to use. I’m a natural redhead so it’s important.
I’m currently having a very bad reaction to a new brand.

Recommendations please! I’m desperate so doesn’t have to be natural, just need it to work.

Anyone else struggle with Aspartame? - the most common artificial sweetener that is in every fun drink 😔. Makes me itch like crazy

I'm going crazy trying to figure out what is going on in my body.
My histamine is so high, i break out in hives when my skin is exposed to cold air.
I have asthma symptoms and my anxiety is out of control.
I have dealt with constipation my whole life. I also have heavy periods and low ferritin that i'm working on increasing.
Before i started on this histamine rabbit trail, I was taking magnesium bisglycinate, fish oil and vitamin d3/k2 consistently. 15mg Zinc bisglycinate helps my acne so i've also been consistent with that.

I've increased my fibre, started taking quercetin which at some times helps but nothing major. I started taking vitamin C and ordered align and culturalle probiotics which are strains that break down histamine while healing the gut if that is indeed my issue.

My diet is really good, high protein and high fiber with healthy fats. I'm assuming the combination of low iron and constipation is the cause for the histamine gradually increasing. I also eat a lot of dairy, so maybe my body just can't keep up with my diet. Any thoughts or insights would be appreciated.

I have been diagnosed by two immunologists with autoimmune chronic urticaria. I went in for a second opinion once my old immunologist from a decade ago, put me in the too hard basket and refused to treat me.

I am so glad I waited 7 months for a second opinion. This immunologist had already had me properly tested for MCAS (I’m negative) and SIBO (still waiting cor breath test results) but has settled in it being autoimmune.

Not only did he suggest that Xolair injections could be something to try, he immediately put me on Montelukast. I have only been on it for a couple of weeks but it’s helping a little with my histamine intolerance issues.
It’s also helping with some of my autonomic nervous system issues caused by hypermobile Ehlers-Danlos Syndrome and hyperPOTS. Both of which have left me disabled and stuck inside of my house.

I’ve been lucky so far not to have any side effects from it. None that are noticeable among all my other issues, at least.

I’m going to wait for a month to try to introduce foods I react to back into my diet, but I’m happy with the results I’ve had already. If I can eat strawberries, watermelon and mango again, that would be the cherry on top of the soft serve sundae that I can no longer eat.

Have many people had luck long term with it? I’ve been on a low histamine diet for years and miss flavour. I would love to eat some regular food again one day.

i am in desperate need of iron supplementation, with my ferritin currently sitting at a whopping 8! i have tried the blood builder supplement which seemed to have good reviews for people sensitive to supplements and found i was in a constant histamine overload the entire week that i was taking it, and when i stopped, my body chilled out. i have seen ads for those iron supplements that dissolve on your tongue and am curious about those since i think my sensitivities to supplements are due to them having to pass through the gut. has anyone had any success with iron supplementation? i don’t currently have any support from specialists or holistic providers and an managing my HI on my own due to financial reasons. i’m just wanting to see what possible options to look into since i most definitely can not afford iron transfusions!!

Does eating a low histamine diet cure this or is it just a plaster for a while?

Hi! What are your favorite low histamine meals/snacks/foods that you are actually excited about and look forward to? :)

I just wanted to throw out there that borscht is histamine friendly. Once I realized the ingredients are generally considered okay you bet I went to work making some.

I made my own beef bone broth for this recipe.

My (loose) recipe is as follows:

At least 6 cups broth, maybe 10 or so? (Depends on size of pot, really)

Bay leaves (I use 2)

Salt to taste

White or apple cider vinegar

1-2lbs beef, cubed, depending on how meat heavy you want it.

1 white onion, chopped

4 cloves garlic, crushed and roughly chopped

2 large beets, peeled & cubed (or 3-4 small beets, peeled, cubed)

1/3 head of red cabbage (really just as much as wanted, more or less depending on room in pot)

2-3 russet potatoes, cubed

2 carrots, peeled and diced

Fresh dill, finey chopped

Cube beets & carrots about the same size - about 1/2" sized cubes. Potatoes can be slightly bigger.

Saute onions and carrots until sweated and slightly caramelized, remove from pot.

Brown beef cubes, then add garlic & cook until fragrant . (Like 30 seconds) Add broth, put onions & carrots, beets and bay leaves in at this point as well. Bring to boil.

Once boiling reduce heat to a nice rolling simmer, cook until beets are half soft. During this time, skim off any foam that gathers at top. Add potatoes & cabbage, add additional water as needed. Cook 10 minutes.

At this point add about a tablespoon of vinegar and salt to taste, adjust as needed. You can add water if it has boiled down significantly, or to taste. Add about 3 tablespoons finely chopped dill as well.

The soup is done once the potatoes are cooked through, usually it's about 5 more minutes after adding vinegar & salt.

Since sour cream is not low Histamine, I added cream cheese to my bowl and it was actually pretty good! I also made GF biscuits w/o yeast and had that on the side. Top with fresh dill to taste. Enjoy!

Edit: forgot to mention to shred & chop cabbage pretty fine so it cooks quickly and is sized well with the rest of the ingredients.

Does anyone here with histamine intolerance also have high cholesterol? I’ve always tried to maintain a balanced lifestyle and because of my histamine intolerance I’ve made a real effort to eat as healthily as possible within what I can tolerate. I’m active most days and have never been overweight, so I was surprised to find out that both my good and bad cholesterol levels are high.

My sleep has also been terrible for the past 3 years because of histamine intolerance. I get what I’d call nocturnal symptoms... if I eat high histamine foods during the day, at night I experience heart palpitations, agitation, anxiety, muscle tension, constantly waking up during the night.

Now I’m wondering if the lack of sleep could be causing my high cholesterol, because I don’t really eat foods that are typically associated with it.

I've been having symptoms of histamine intolerance possible MCAS for the past 9 months. Mostly eat a low histamine diet and have found a reduced reaction to high histamine foods since this began. However, I still struggle with high heart rate at moments and I am always fatigued. This is not always triggered by foods, it just happens. Have any of yall found anything to help with this?

I’m pretty new to trying the low histamine diet, and I was hoping someone could please help me figure out what was wrong with the meal I ate last night.

- Pork ribs (previously frozen, sold fresh at store and stored for two days in my fridge before grilling)
- dry rub (salt, garlic powder, onion powder, cumin, a little smoked paprika)
- plain corn on the cob

I knew some of the ingredients might be problematic, which is why I only added a little. I also tried not to store the ribs in the fridge too long. I don’t usually have a strong reaction, but I was so on edge and couldn’t sleep last night.

Any tips? I’m having a really hard time with this diet and I’m afraid to season my food with anything now.

I've read several posts from people here who got better and tried following all of the stuff that helped them. I discovered I have HIT because of lower levels of DAO last year. In summer I started following the low histamine diet. I cut out everything that's on the SIGHI list for two months. Then I decided to try out some stuff to see how I react but most of the times it didn't go well so I've almost stopped trying out anything that is labeled 1 or higher on the list and I very rarely do so. In the fall of last year I also started taking quercetin. When I suspect some food I'm about to eat may contain something high in histamine I take a DAO supplement. Despite this I still get stomachaches and dermatitis. I'm starting to feel like this is never going to go away. I didn't use to have it, in the past I used to eat everything without an issue but I started reacting to some foods in the past two years and last year they found I have lower levels of DAO.

So I guess I want to ask the people who actually got better significantly or cured this, how long did it take you to get there?

I’ve been sick for like 1.5 years now. It started off as just being tired all the time , not getting worse or better just all day feeling rly meh and shitty. Then slowly it got worse - I’d get nauseas a lot, and get headaches, felt like shit 24/7. Nature of my fatigue changed: I’d get these waves of fatigues like I’d just be sooooo tired like literally feel drugged for an hour or two, and after a “wave” id just go to my baseline of feeling shitty.
ONE important thing to note is throughout all this time, even at my worst, I’ve always been able to move my body and exercise. I don’t have any adverse reactions to exercise. I don’t think I’ve ever felt “PEM”. I feel that my “waves” r unrelated to exercise and movement
Also I have rly fkn bad dark circles

Thankfully now, I’m feeling better than I did a year ago, no more nausea, no more headaches, and I do feel my fatigues more manageable. Like I still just feel drained all day but wtv im trying to get thru it. I feel like it’s a mental battle, cuz my fatigue is not that bad to actually stop me from doing things, it’s just killing all my motivation and confidence cuz I feel shitty all the time.
And I still get “waves”.

I have days where I feel almost no fatigue, like completely normal, and then days where I just feel drained all day. And if a wave hits well it’s like I got roofied for the next hour or two. I feel like waves occur after eating so I’m trying to explore like an allergy or histamine or smth, but idk it’s not very consistent. Some days one food will cause me to be “roofied” but other days the same food and I won’t get a wave.

Today’s a day where I feel so drained like wtf.

Btw ive been to the doctor a million times I’ve done every test ever and now im seeing a functional medicine doc.

Mid-40's, and I've always loved good food, fancy food, junk food, you name it. I loved eating out, trying new things, fun or complex flavor combinations, and sweets, oh my. Most of those things now make me feel physically awful, and it's so dang depressing to me. Compounding that is I also enjoyed alcohol. Not to excess, but enjoyed good tequila and bourbon, IPAs, ciders, sours, or just a nice cold Modelo. All out the window.

It's total mindset and lifestyle shift that I'm having a hard time adjusting to. Is there a book, blog, podcast, or something that helped?

It's become a major issue in the last year following an extended illness. I have a follow up next month with an allergist/immunologist. I've been on levo for Hashimoto hypothyroidism for ~14 years. Allergy testing revealed I have no true allergies, but several wonky immune/inflammatory markers consistent with HI/MCAS that they'll discuss more with me next month. I don't foresee a "quick fix" and I know I need to make these adjustments, it shouldn't be so difficult but it just is so far.

Idrk what to put here im 18m as of 25h ago. I’m pretty sure I have a histamine intolerance. I have a bunch of symptoms but my main concern is the joint pain. For along as I know my knees have hurt I’m only 18 I don’t think I should have joint pain at all but this pain it will reach peaks of 10 but normally sits at a 6/10 and hits 8/10 when I walk. I’m no longer certain this pain could be from histamine reactions. I feel hopeless I’ve tried the low histamine diet was rlly strict for months but the pain unaffected still hurt as much. Its progressively getting worse I use a thc (weed) pen to manage it but recently that hasn’t been enough I want to stop this pain so I can exist and think without it feeling like there’s a constant alarm in my head. I’ve also been using codeine which I personally hate, I have a strong opposition for opioids and refused to take them for a long time. I feel as tho I’m living in overtime, like I’m staying intoxicated constantly to stop the pain until I find I reason to keep living or to give up. I don’t want to… ,but I rlly do feel hopeless if you’ve experienced pain similar or have ideas please lmk

(Sorry for any typing errors or if I just don’t make sense at parts like I mention I’m constantly and currently intoxicated on 3 substances, I’m still in pain but thankfully only my shoulder and it’s barely a 4 but that’s more than it logically should be but a luxury I’m going to enjoy)