First mucus in 3 years since trikafta.. wearing off?
I want to preference this but acknowledging how lucky I have been to have access/ responded so well to trikafta and avoid any antibiotics in 3 years. My worries are very bottom of the tier for cfers
I have been so fortunate that 3 years ago when I started trikafta my mucus literally disappeared overnight. No more clearing my throat every sentence, hemoptysis and frequent antibiotics.
It was truly life changing
Since that day of my first pill I have had no antibiotics , hospital admissions or even a cough which is absolutely WILD to say considering I was going very downhill in my early 20s
Today I felt my chest felt unusual and suddenly all “filled back up” with mucus like I was pre trikafta.
I’ve gone from completely clear sputum yesterday back to green thick mucus but no cough.
I have gone through a pregnancy , Covid twice, the flu and preschool germs and still free of any mucus or Infection🤯
I think I got abit delusional and like I was cheating cf.. just hitting me very hard to be thrown back into it. I will be sending away a culture asap once the weekend is over and seeing what is lurking / growing. I know it’s absolutely inevitable to avoid infection but the first one back is really hitting hard.
I’ve heard some people comment that trikafta has become ineffective the longer your on it??? Is there anyone truth to this haha??? Or anyone that has experienced trikafta “wearing off” lol maybe I’m delusional
Anyway here’s to praying im only growing staph and oral antibiotics lol