u/Chillosophizer

I saw a couple videos of this trend where someone would give their best bits of advice from their years of therapy. I was wondering if anyone here had anythingn therapy's left you with that really help them through their journey with ME/CFS. I'd love to hear any insight!

Currently moderate ME/CFS, living rurally. Due to moving, death in the family and a lowering baseline I just can't fight this. I havent been able to find a lawyer or make it to enough medical appointments to have enough evidence to appease them. I still need to find a new PCP. The old law firm I was talking to is ignoring me. The times Ive called agencies to help me find a lawyer have turned up nothing, no one gets back to me.

I barely have the bandwidth to watch tv and go to the bathroom, often times I dont. I make it out of the house once a month, if that. Yet apparently that's good enough to work. I hate this system so, so, so deeply. I can't take it anymore.

moderate-severe ME/CFS, between housebound and bedbound. Had a pretty big fight last night about how I'm doing. Currently I'm saving energy and using it all to move my things back with my family, so I haven't been going to doctors. I've tried a dozen different meds, and none have helped me. I'm only going to the doctors to appease them, as 6 years of going through the US healthcare system and keeping up with research doesn't lead me to thinking it'll be productive. All I plan on getting out of new docs appts is nutritional advice, blood work, and a stomach check.

How do you get through the ablelism and lack of understanding in your support group? I've tried explaining PEM until I'm blue in the face. Last night I got a lot of "Lets do SOMETHING" "Why not walk 100 feet and see what happens?" "There's a fix for everything" "I was in the hospital for a week (bad infection) so I know EVERYTHING you're going through"

I've tried so much. I don't want to be stuck here either. Every day I act in my best interest to recover and am doing as much or more than I can, pacing, nervous system work, etc. I'm just so fed up, and am now feeling myself crash from everything yesterday. How do I get through to them?

I'm mostly looking for reusability as I'm the only CC person so I'm masking a few hours a day every day.

I was curious if anyone else has experienced this. I'm running on 2-3 hours sleep after a more insomnia forward night and I'm feeling physically better today than I do most days.