r/SSDI

I am terminally ill with a compassionate allowance condition, and was very recently denied again after the SSA ordered a medical evaluation by their own physician. The physician said I was obviously disabled, and they don't really understand how I was denied before.

The situation gets even more absurd because on October 30th, the rules are being revised to specifically include my condition in the blue book in no uncertain terms (even though the condition was already in the list of compassionate allowance conditions), so there is literally no possible way I could be denied. I even contacted my case manager and she said she would look into the rule change.

My question is, what was the point of any of this? Why was I denied if they are just going to have to accept me in a month? Were they hoping I would pass away between now and Oct 30th? Why order a test if they were going to disregard the results regardless? Why did they insist for years I wasn't disabled if they were going to just change the rules and say "whoops, our bad". Do I need to sue in federal court for discrimination or something? I don't understand.

I have already reviewed the pinned post by MrsFlameThrower pertaining to requesting a file following an initial denial. Her post mentions getting copies of medical records reviewed and any CE's that were conducted. She does not mention if you are able to get a copy of the Disability Determination Explanation (DDE), Psychiatric Review Technique (PRT), or Mental Health RFC. I have already noticed several of my most critical diagnosis' that the evaluator did not document as a part of their determination. Does anyone know if I will get copies of these other documents? Or if I am allowed to have them? I think they would help me greatly with my reconsideration.