u/Wake-Robin

In terms of doctor visits, labs, etc -- what is expected of you to maintain the benefits? Especially if you have a condition doctors cannot treat like ME/CFS?

How often are you supposed to go to doctors to "manage" your condition? How often have you had a CDR (Continuing Disability Review)?

I rarely go to doctors now. I've been sick with ME/CFS 16 years. Doctors are no help and I'm too ill. So if I apply for SSDI I'll have to start going often.

But what about after I finally win disability? Should I count on labs and visits every... 3? 6? months? I'm mostly housebound and partly bedbound, so this is crucial info for me.

Thanks!

For people who won disability (SSDI or SSI) in the US for ME/CFS, what is expected of you to maintain the benefits-- in terms of doctor visits?

How often are you supposed to go to doctors to "manage" your ME/CFS? How often have you had a CDR (Continuing Disability Review)?

It'd be helpful to know if you're above or below age 50, and how long you've been on SSDI.

I rarely go to doctors now. I've been sick 16 years. They are no help and I'm too ill. So if I apply for SSDI I'll have to start going often. But what about after (if) I finally win disability? Should I count on labs and visits every 3? 6? months?

Thanks!