u/Choice-Leek-2857

Hi everyone. I’m newly diagnosed with stage 3 PILC breast cancer and about to start aggressive chemo/radiation treatment. I also have lupus, and I’m honestly anxious about how treatment might affect autoimmune symptoms and flares.

I was hoping to hear from other women with lupus who have gone through breast cancer treatment. How did your lupus behave during chemo/radiation? Did symptoms improve, flare, or change in unexpected ways? Were there certain treatments that were especially hard on you? Anything you wish you had known beforehand?
I know everyone is different, but hearing real experiences from people who understand both lupus and cancer would mean a lot right now. My lupus has been well managed for the past 6+ months and I’m nervous about what happens now. Thanks 🙏 and 💜

Hi — I’m new here and honestly still trying to process all of this.

I was diagnosed last month with bilateral invasive lobular carcinoma and just had a double mastectomy. My final pathology came back showing pleomorphic invasive lobular carcinoma on the right side.
They found cancer in 6 lymph nodes on the right, with extranodal extension into the surrounding tissue, which has me a little more freaked out.
I’ve been reading that pleomorphic ILC can be more aggressive, and now I’m kind of spiraling about whether this changes things for me. The left side has clear margins and no nodes involved.
I meet with my oncologist tomorrow to go over my chemo/radiation plan, and I’m trying to go in with some idea of what to ask.

Has anyone here had pleomorphic ILC?
Did your treatment plan end up being different because of it?
Especially if you had multiple positive nodes or extranodal extension.

I’d really appreciate hearing real experiences — even just what you wish you had asked at the beginning.

Thank you 💕😭❤️

Hi — I’m new here and honestly still trying to process all of this.

I was diagnosed last month with bilateral invasive lobular carcinoma and just had a double mastectomy. My final pathology came back showing pleomorphic invasive lobular carcinoma on the right side.
They found cancer in 6 lymph nodes on the right, with extranodal extension into the surrounding tissue, which has me a little more freaked out.
I’ve been reading that pleomorphic ILC can be more aggressive, and now I’m kind of spiraling about whether this changes things for me. The left side has clear margins and no nodes involved.
I meet with my oncologist tomorrow to go over my chemo/radiation plan, and I’m trying to go in with some idea of what to ask.

Has anyone here had pleomorphic ILC?
Did your treatment plan end up being different because of it?
Especially if you had multiple positive nodes or extranodal extension.

I’d really appreciate hearing real experiences — even just what you wish you had asked at the beginning.

Thank you 💕😭❤️