r/lupussupport

I’m having some dexterity issues and I’m curious what other people struggle with.

I (25F) have had 6 miscarriages. I was diagnosed with APLS (blood clotting disorder) but later this year was diagnosed with Lupus. My OB has told me that we can keep trying but it is likely that I simply won't be able to have bio children. Everyone seems more upset about this than I am, which is fine, but my husband and I are looking for answers moving forward regarding my health and safety.

I do not have the deep-rooted desire for bio kids that so many others do. I've tried (clearly), including being on Lovenox alongside my standard Lupus med.. still no dice. I have a long list of health problems and am simply okay with not passing any of it, or genetic predispositions for other things, onto new humans.

I want to know about other women's experiences with pregnancy and Lupus. I know it can be done, but was it overwhelmingly difficult? Did you flare constantly? I also want experiences relating to choosing to not have children- did you get a hysterectomy or just tied your tubes? I am worried about surgical risk (if there is any) between the two options and if there's a known tie between hysterectomies and Lupus flares/overall symptoms lessening.

For context: I have other autoimmune diseases. I make my meals at home (strictly anti-inflammatory) and take the meds prescribed to me. I took all precautions for successful pregnancies including progesterone, prescription folic acid, etc. I want to be a mother more than anything and have ALWAYS planned on adoption, pregnancy was just the natural first step. I am so grateful for it as it helped me get diagnosed with other conditions, helping to piece my medical puzzle together. I'm here to ask if a hysterectomy would actually give me a chance at living a semi-normal life or if it's seemingly unconnected to Lupus/other autoimmune conditions.

Thanks, friends <3

TLDR; any tips for getting through the worst side effects? Was the first time you took it the worst side effects for you or later?

Hey all, newly diagnosed, but not very new to the symptoms.

I just took my first dose of methotrexate Saturday night, coming up on 48 hours ago. The first 12 or so hours were mostly weird brain fog and thinking this was way easier than anticipated. Then it hit me like a mack truck.

I had a migraine headache in my top 3 worst of my life. If the worst part of it had lasted any longer, I was seriously considering a trip to the hospital just to rule out any brain issues. After that, it's been increased body aches, rashes and fatigue. The brain fog is still pretty heavy, but I think I'm doing alright navigating that for the most part, at least.

Any tips, tricks? Suggestions? What was everyone's timeline like? Did it get better or worse for you? Do I really need to wait 6 weeks to find out if it'll help me?

Thanks so much in advance, this is pretty intimidating

Hey there- I am new here. I adopted two kittens around 6 months ago. I’ve been using Worlds Best, and my partner is not as diligent as I am so when I go into a flare and need rest, the tracking makes a MESS.I have Lupus and am looking for something better. Thank you!