Husband recently diagnosed
EDITED
Hi all! Caregiver here. My husband was recently diagnosed with MS. I’m hoping for some guidance on more ways I can support him through this new chapter in his life. He was first diagnosed with transverse myelitis and after developing lesions on his brain he was officially diagnosed a couple months ago. He says he has a lot of tingling in his legs and sometimes in his abdomen which makes him very nauseous. He’s on Cymbalta and modafinil plus once weekly vitamin D. We are waiting on approval for Kesimpta however, we are on state insurance so it’s taking quite a while for approval. I noticed when he was first diagnosed he seemed to get much worse almost immediately after his neurologist told us. I’ve been doing quite a bit of research and have shared with him things that I’ve learned but he doesn’t really seem too interested in trying any of my suggestions. He likes to sit in his car from the time I get off work at 7pm and doesn’t come in until around 1-2 in the morning. I’m sure he’s still just trying to process everything and I try really hard not to take it personally. I guess my question is has anyone with MS found sitting in the car to be helpful or harmful on any way? We do talk a lot about it and he really does have a positive attitude all things considered. I’m just worried he’s giving up. He still walks with a very steady and straight gait but does say he gets very tingly in his legs and feet. Any advice would be so helpful. He’s my whole world and I’ll do anything to support and help him in any way. Thanks for taking the time to read.
Thank you everyone this is all really great advice. I’m definitely going to back off a little bit and just remain available if he wants to talk symptoms or anything diagnoses related. I did forget to mention he does use alcohol and marijuana as a self medication (his doctor is fully aware) he never gets drunk but says that these things help him feel better. I’m assuming emotionally more than physically. Thank you all for the perspective I really do just want to be there for him in any and every way and if he needs space then I’m happy give it.