MCTD maybe advancing with a jump
I am so scared and alone right now, that I just need to scream into the void. Or Reddit at this case.
I got incredibly painful rheumatoid joints a couple years ago, when I was around 20 or so. Don’t remember exactly. But it broke all my life plans and I had to start from scratch, but with a loving family at my back.
The last few years where good and I would say I was in remission and completely of my meds. Recently the hands started acting up again so I had a call with my doc and started meds again. But the pain ist persistent and now my whole intestines don’t work like I am used to my whole life. I am always in pain Alter eating and nothing helped so far. I have mctd, so it could be that my internal muscles that are for moving food in my body are not as mobile anymore. Like being slightly paralysed.
I always knew that these symptoms and other stuff can happen with mtcd, but now having all this pain AND my loving partner being away for two weeks for work stuff, I am so scared. I hope that it is just a „eat more fibers“ thing (even though I tried it already so the chance is really slim).
I just needed to yap to people who know the feeling of being in pain and scared, while you wait for your next appointment that will clarify what your body is now doing to sabotage you.