Has anyone else read / listened to Not Quite a Ghost by Anne Ursu?
It's about an 11-year-old girl who gets ME/CFS, told through a haunted house story. Finished the audiobook yesterday and loved it. The author has been diagnosed with me/cfs herself, which explains why it's described so very well.
Really recommend it if you haven't come across it yet - I know it's written for kids/YA but it's just so well done. And there's no simple "oh you're cured" ending either.