u/CosmicCreature44

▲ 3 r/MCAS

I'm panicking and don't know what to do

I've made a few posts recently. Since I stopped Xolair treatment after 3 shots a bit over 2 months ago I have had more and more issues. I've lost a food every week or two and am currently down to about 8 foods. This had been my worst issue until the past few days.

I got a new AC unit so I wouldn't have to deal with my older one possibly having mold. I reacted instantly when I turned it on fan mode. This freaked me out so bad. I am highly allergic now to pollen and pollution outside so I have to have the damn thing. it's going to be 90 in a few days here. I ran the ac for 5 hours each day till today on high and blasted my air purifier as well. Today I poked my head in and seemed to be ok with it.

I was wearing my 3m half mask more often the past few days going in and out of my room elwhile dealing with this new issue. I noticed yesterday that when I took my mask off even in the living room I was feeling instantly a little allergic. Ok.... Today it was much more prominent and also when I went to kiss one of my cats my nose instantly got blocked and my upper lip got tight. Absolute panic sets in...I'm already living in an older home that is unkempt(not my area) and dealing with that..plus reacting to pollen and pollution more...and losing foods and now I'm allergic to my cats?? I have 2 inside and a feral colony in my yard!

My allergist that was treating me ghosted me as soon as I said I wanted to stop the Xolair due to it making all of my reactions worse and stronger. He was looking into other medications(even though I thought I should be giving my body a break) and compounded klonapin and some other things he thought may help. He totally stopped responding to me. I messaged him after 2 weeks of nothing and I was like did you forget about me and this this and this? He said "no it's more complicated"and that's it! Moving on....

I have No allergist now. I'm completely on my own and I am reacting non stop to seemingly everything. Im pretty sure I have a candida infection again in my guts. My tongue has fur growing on it along with this and no matter how much I scrape and brush every day it comes back. I have the slight dry skin crackles at the corners of my lips too which all screams yeast to me. But I CANT TOLERATE ANY MEDICATIONS! I quit Xolair because started reacting with anaphalxis to everything new or things I hadnt had in a while. New med or supplement even at a tiny CRUMB gave me the whole list of anaphalactic symptoms.

The ER as we all know is the fucking WORST for this issue. they roll their eyes and are like idk what you want us to do...you are having anxiety that's all. I know damn well it's not I can deal with anxiety! Anyway...I cannot tolerate ANYTHING new and am reacting to everything so fast! I'm terrified. I'm still up now just took benedryl because it's the only thing I can take without reacting. I've had tingling and snapping nerves all over my whole body and the waves of severe anxiety\doom since evening but I've tried to calm myself and see what I can get thru.

I go.out of my room to get something and my face gets tight.

I'm autistic...I have little to no support system...a long history of medical trauma and I am backed into a corner now. I have a PCP appointment on Wed but they are useless. This one is filling in for my normal Dr(who's useless) and it's the only thing I could get...and I don't expect much. I don't even know if I'll make it till then! I. So scared and I need help.

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u/CosmicCreature44 — 7 days ago
▲ 3 r/homeowners+1 crossposts

I need help. I recently bought a new AC unit. I have extremely bad allergies and need to run it quite a bit because the windows are usually closed. Anyways...I am sitting here suffering with allergies IN my room and I've been trying to figure out what it was...and when examining the windows I realized...there's a BREEZE coming through my ac unit?! I have never had this issue before. After some examining I could see light inside through the holes you slide the side fins down through so I put tape over those on the outside...but I can feel a breeze! This is a low end unit and has no ventilation choice and is not meant to do so...is this something I can fix or? I'm not sure how I would anyways but the return window closed a few days ago of course. Any helpful tips appreciated!

Edit to add that it is DEFINITELY NOT a window seal problem...baby is sealed up tight inside and every joint is taped. The only entrance for air is through the vent on the front. ✌️

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u/CosmicCreature44 — 24 days ago
▲ 19 r/xolair+1 crossposts

I am currently barely functioning. I was titrated up on Xolair and told to push thru all the non stop reactions and I finally stopped when I was having anphalactic responses to stuff that just made me a lil puffy prior. Everything is a million times worse now and idk what to do. I'm losing my few safe foods now...my bacterial overgrowth is definitely back and I can't treat it because react to EVERYTHING! No meds other than benedryl or Advil dual action and my allergist already drove me to benedryl toxicity once recently. Now I'm starting to have toxicity symptoms using less and less of it.

Saccharomyces boulardii is one thing I could always take to fight the sibo and reliev nausea and bloating etc and I took a tiny dash last night and reacted within 5 minutes. I'm terrified. He's the only Dr I've ever found that even believes MCAS is a thing...and I have alpha gal as well.

Anyways...the ER is a HORRIFIC place to go now because they just roll their eyes at me as I'm literally dying..they don't know what to do and get MAD at me for going in. The allergist is a mess...my PCP told me not to call her about this stuff and so WHAT AM I SUPPOSED TO DO!? IM SO FUCKING SCARED! I'm just sitting here all day trying not to move too much.

Xolair has ruined my life...it really decreased my overall inflammation rapidly and my body felt better but EVERY reaction goes straight to anaphylaxis now! The Drs don't care...the ER is like fucking mean girls club and I can't take anything. I'm flailing here...Im almost 2 months out from the shots and I'm 😭😭😭

I realize this is a mess but so am I. I had a virtual appointment with the allergist 2 weeks ago and he said he'd have some things for me to try(idk how) by the end of that week. Heard nothing. I call and message and text the entirety of last week and they are closed all week with no warning? 2 weeks of waiting and there's no answers...no meds...no plan...nothing gets followed thru with there. Pls help me out I am freaking out.

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u/CosmicCreature44 — 25 days ago