I can live like a normal human now :,)
I’m not asking for any help, just want to celebrate how far I’ve come with treatment.
I used to get migraines on and off for months on end. The severity would vary. I would have maybe 3 good days a month, and ab 5 where I could slightly move (wash myself/eat/etc). But most days, I would be locked inside, bedridden, with covers over the windows. I had to wear 2 sets of noise cancelling headphones, sunglasses (yes in complete darkness), and freezer head wraps that I constantly had to change out. I couldn’t do ANYTHING other than lay in bed and wait. There were so many times I genuinely thought that I was going to die.
I really never thought I’d be able to run, workout, be outside in the sun or when it’s groggy, eat sweets, drink anything other than cold water, stand for long periods of time, WORK, do field work and research (geosciences student!), or even be able to graduate without getting a weeks long migraine afterwards. But I can now. I want to cry at this point; it feels so good knowing that I’m getting to a place with my chronic health issues where they’re more or less under control.
With my treatments, I’ve actually been able to act like a normal person and do normal people things. I just got through my third round of injections, and have been on Qulipta and Ubrelvy (as needed) for 2 years now. I went from having 7 or less “normal” days a month, to having less than 5 (less than a day long) migraines a month. My mental health has gotten infinitely better, and I’m finally starting to live. I am not just my disability anymore, and it’s made life so much more worth living.
I don’t think people who haven’t dealt with it will ever truly be able to understand what we all go through. I’m truly glad that there are people who don’t suffer like us, but fuck does it make me mad that we all drew such a short stick.
Thank you science for trigeminal nerve blocks, Qulipta, and Ubrelvy. Thank you Reddit for this sub helping me seek treatment and trying Botox. And thank you 7-11 for chuggable Dr Pepper slushies.