CCI / AAI after Head Injury: Real Talk and Thoughts
Hi People, I‘m new to this Reddit Group.
I want to talk about CCI and/or AAI specially after a Head Trauma or Injury (so, not if it just evolved after covid or some infection of if you have hEDS).
I‘m a 36 y old male from Germany. In January 26’ i had a fall to the head in my bathroom. It was not a high velocity impact like a whiplash or some car accident. But my whole life changed in the following months.
Immediately after, my main symptom was dizziness - plus secondary things like brainfog and vision stuff. After an odyssey of neurosurgeon visits, ent‘s, neuros (the whole spiel like we know it) it was clear that it was from the neck. I even could work for about 2 months after but then the symptoms became to heavy so i had to stop. I had one Atlas Alignment (but not with an Atlas Orthogonal) which got rid of the heart palpitations but slowly in the next months my cercival spine „broke“ down.
Upright MRI shows signal changes in the alar ligaments and a kyphosis of the neck curve. Now I cannot stand longer than maybe 30 mins upright, my head feels just to heavy and there are soft grinding sounds whenever i move or walk or switch positions in bed. Ok this we know.
But i wanted to talk kind of raw and unfiltered here i hope you understand my thought patterns;
I was in the best shape of my life, had a new job, very good income, my car, my own appartement. A healthy and fit lifestyle, took care of my parents etc.
As a Man you want to be the rock and the provider and the foundation for your future family. You want to be the strong shoulder when life gets a bit heavy and be there for your wife and your kids. The masculine frame of a firm man is to be strong/healthy physically, mentally and emotionally to support the loved ones and the family.
So you want to tell me; that now my whole essence in life is blocked ? You want to tell me that now I cannot brush the dust under my couch because the head is not stable ? You want to tell me that I can no longer fly on vacation with my future wife and help her put the luggage on top of the seat because i can‘t look up or the head and neck has problems ? You want to tell me that if my future child has his/her own home i cannot help to build a closet or help with furniture because my physical state doesn‘t allow it ? So we just sit in front of the computer and j*erk off until out lives go by ?
I have more than 50+ years to go if the Lord allows it, you cannot tell me in 2026 there is no solution to this to reverse it or cure it completely. They can fix the hardest accidents or fractures and even cancer treatment has evolved very much. So this is basically the rarest and most „crippling“ conditions that someone can have and there is no 100% cure in this day and age with all this technology because the ligaments at the head are lose ??? Because of one fall to the head ???
Sry for the vent but this has life altering impact physiologically, economically and mentally.
Please, if you have similar stories; tell me what helped you to get back into a normal life if even or share the exact things that you did so you could be „normal“ again.
I‘m not interested in the diagnosis, that we know. But what is the solution ?
Thank you.