My cause of Pulsatile Tinnitus - paraganglioma
I've had Pulsatile Tinnitus for around 6 months. Largely ignored it at the start as it was only happening a handful of times a week, and would stop if I moved my head slightly.
With the help of AI (I know it's not great but I found it very useful) it told me that the whooshing I was hearing was likely PT. Confirmed by telling me to time it with my pulse, and holding my neck stopped the PT until I let go.
Went to Dr who referred me to ENT. I'm in the UK, so NHS referral.
That was about 2 months ago. I'm still waiting for that NHS initial ENT appointment.
Fortunately I have a form of private healthcare where I can beat the NHS waiting list and so immediately started that ball rolling.
Seen by an ENT specialist, he referred me for a full hit CT scan.
Went back today for follow up - he confirmed the CT scan shows that I have likely paraganglioma. He's ordered an MRI scan whilst urgently referring me to the right NHS department.
Not great news but at least I have an answer to work with now. Hopefully the next part of the NHS will be quicker as they will have all of my scans.
Useful to hear from others who had this.