My ASD regularly hurts badly and sometimes makes me unable to move or do other things, but doctor said its "not affecting anything"
I found out I have ASD after suffering constant life altering symptoms, I used to be an athlete and had to stop, I cant even work and am legally disabled due to syncope and hypotension, general constant fatigue and dizziness. I always had heart and lung pain that I was told was just heart burn. My cardiologist found the hole in my heart during a test, which recreated the pain id been feeling when oxygen was pumped into my heart. After this test the pain got worse significantly. I was diagnosed with the ASD and I was optimistic that it would be fixed easily. My cardiologist then told me that it doesn't seem to be affecting anything due to its size, and that i should basically force myself to exercise like I used to to improve my symptoms.
I was frustrated but tried to believe her. Ever since the air pump test, my heart pain has increased significantly more, sometimes i cant talk, exhale fully or inhale fully, even laughing, moving certain ways causes the pain to flare up in my heart, and sometimes my lungs. Sometimes it hits me randomly sharper and more intense, to where i cant even move. When I was at college, i was 30 minutes late to my class because when I stood up to leave the cafeteria i was suddenly hit with heart pain that made me clutch my heart and fall over, I couldnt even sit up without it getting stronger. This pain happens constantly. I'm scared and feel ignored by my cardiologist. My primary doctor is trying to get the MRI scan that my Cardiologist did and for some reason its not even on my medical record?
Other than that I need to wait another month before I can see my doctor again. I was curious what you guys think of this, since I only found out I have this in March.