Kidney
I’ve been reading through this community for a while, and I finally decided to make a post because I think I need to hear from people who truly understand.
I received my first kidney transplant when I was 12 years old. Unfortunately, after almost 10 years, that kidney recently rejected a few months ago. I’m now 21 years old, back on dialysis, and beginning the process of getting listed for a second kidney transplant.
To be honest, this is the hardest thing I’ve ever gone through. I can’t believe this is my reality.
Just a few months ago, I was focused on college, friends, and starting my adult life. Now it feels like everything has been put on hold. Between dialysis, hospitalizations, and waiting for another transplant, I feel like I’ve lost control of my life. The uncertainty has been the hardest part. I find myself constantly thinking about what my future will look like, Some days I feel hopeful, and other days I feel completely stuck. I’ve been struggling mentally with all of this, and it’s honestly been overwhelming.
I’m not writing this for sympathy. I’m writing because I would really love to hear from people who have been in a similar situation.
If you’ve had a second kidney transplant or a kidney transplant in general. I’d really appreciate hearing your story.
How long did you wait for your transplant?
if anyone with O+ is willing to share their experience.
Did you get listed at more than one transplant center?
Is there anything you wish you had known while waiting?
What helped you get through the uncertainty?
If you were transplanted, how has life been since?
Are there any transplant centers or states you had a particularly good experience with?
If you could give one piece of advice to someone in my position, what would it be?
Thank you to anyone who takes the time to read this or respond. Right now, hearing from people who have actually lived through this would mean more to me than you know.