r/dialysis

So my dad is 55 years old and hes been on dialysis since April, he barely survived. His energy is better since dialysis and his appetite and everything is better except his coughing. I should mention that he smokes and has been smoking since he was like 17 BUT it was never this bad. since he started dialysis his cough is awful and he cant stop it, and on average he starts coughing every like 5 minutes and its not a dry cough and it lasts for at least a 2/3 minutes.
He got an x-ray of his chest and its all fine. They said that its probably water around his lungs from dialysis and they gave him antibiotics. Its been three days since hes taking antibiotics and on today dialysis they pulled more water out, but hes still coughing like constantly and its crazy and his lungs hurt so much and he looks exhausted. he literally cant sleep because of it. if anyone has any tips or advice please help i dont know what to do anymore and he is in so much pain.

Has anyone here done MDMA? Can I try it for a rave that I'm planning to go to?

I recently interviewed with a recruiter for a PCT position at Fresenius. He told me I would need to be available and flexible Monday–Saturday.
I explained that I’m in nursing school and have classes on Wednesdays and Thursdays, but I’m completely open to any shift on Mondays, Tuesdays, Fridays, and Saturdays.
When I asked if I basically needed open availability all 6 days for whatever shift they might schedule me, he said yes.
For anyone who works or has worked at Fresenius, is this the case at all locations? Or does it depend on the clinic/manager? Are some locations more flexible with nursing students who have two set class days?

Hi everyone! I’m hoping some former PD patients can help me out. 💜
I received a new delivery of PD supplies just 4 days before I got my kidney transplant, so now I have a bunch of PD bags, lines, and supplies that I no longer need.
I called Vantive, but they told me they don’t pick them back up, and my PD nurse doesn’t want them either.
For those of you who had a transplant while on PD, what did you do with all your leftover supplies? Were you able to donate them somewhere or find an organization that would take them?
I’m in Central Florida, if that helps with recommendations.
I’d really appreciate any ideas because I hate the thought of all these supplies going to waste! 💜

I was advosed to get some protein bars by my center as I'm not gettijg enough in my diet. They gave me a sample of a Jimmy bar. It wasn't the worst thing I've ever had, but is there anything you folks like better? Need something lower in carbs and sugar as I'm also a diabetic.

Hey 👋🏼 I’m based in the UK and my husband is on HD in the hospital but soon to be at home. I really wanna try and be more helpful and am looking for advice from people on heamo to advise on what’s the most helpful and useful things to help his day to day and quality of life please. We’ve got an almost one year old who keeps us busy but I feel like I can do more to support him as a wife. As people on HD, what are some things that you find really helpful? Any tips would be greatly appreciated 🤲

I need some advice. My mums been on Dialysis for over a year, once then she’s been in so much pain, the only thing she can put it down to is the dialysis. All her joints are painful, she feels like she’s seizing up. She’s on Cinacalcet, but this hasn’t seemed to work with her calcium levels. Every time she asks her renal doctor about the pain and what to do all she says is speak to your GP. She came to the end of her Cinacalcet tablets, when she asked her renal doctor for a prescription again the response was speak to your GP, despite the prescription originally coming from her kidney doctor. Her GP said he can’t prescribe this drug as it’s a specialist drug. At this rate we don’t know who to turn too and what to do, no one is willing to give any answers or help.

I've had 3 needle infiltrations since May, when I started dialysis. My left bicep looks like I've been doing weights compared to my right & the bruising finally came out today, after it happened Saturday. I was supposed to get my catheter yanked this week & I feel bitter that it's not.

I have small veins & I don't understand why they're not using ultrasound or a vein illuminator to find my veins more easily rather than what seems to be using blind luck. I only see my nephrologist or her nurse at the clinic, the doctor once a month & nurse on Thursdays, so no office there. I did leave a message for her at her main office, on my vascular surgeo's suggestion, but I don't know when I'll hear back.

It's frustrating. I worry that my vein will be permanently damaged with all of the difficulties getting/keeping a needle in my vein & that it'll affect the health of my fistula. I also have fibromyalgia & the pain from the infiltration is feeding into the fibro, so that I'm having a major pain flare. And so freaking tired from all of it.

Although I did come up with a dialysis joke- how many tech/nurses does it take to put avneedle in a dialysis patient?

4, but they have to be really close!

Got the call yesterday while at work, got to the hospital lastnight, transplanted this morning at 8am. This year was rough after having to switch to hemo from pd after 6 years. I had my fistula surgery scheduled for next week and I was really starting to feel down in the dumps. So keep your head up yall! If your on the list, it WILL happen!

CLÍNICAS DAVITA TRATAMENTO RENAL E O SUPERFATURAMENTO EM CONTRATOS
precisa de uma ação imediata para evitar a perdas de recursos públicos:

Pacientes, familiares e acompanhantes,
Este é um alerta público baseado em relatos e denúncias recebidas de pacientes e familiares. Há situações graves que, segundo esses relatos, colocam em risco a segurança e a qualidade do tratamento dialítico. Não se trata de casos isolados. Se você ou alguém próximo está enfrentando qualquer dessas  situações abaixo, documente e denuncie formalmente.
Relatos frequentes de irregularidades:
Evitam dá informações
Clínicas com excesso de pacientes, prejudicando o atendimento e elevando riscos de contaminação;
Dificuldade ou recusa de sessões extras mesmo com indicação médica;
Falta recorrente de medicamentos e insumos essenciais;
Uso inadequado ou ausência de EPIs e materiais de proteção; como luvas, mascaras, fitas, e até gases.
Desinfecção insuficiente das máquinas de diálise; pacientes sendo colocados máquinas contaminadas, observem.
Redução do tempo de tratamento sem justificativa clara;
Problemas na coleta de exames e atrasos/erros nos resultados;
Lanche inadequado ou inexistente;
Danos a fístulas e trocas de capilar entre pacientes;

Peso seco errado, sem ajustes, provocando câimbras  
Reaproveitamento de materiais (fitas, soros etc.) e indícios de desvio ou protocolo de economia excessiva de insumos que prejudicam o tratamento.
Mortes de pacientes, significa erro do tratamento, operação, mal acompanhamento, orientação, como em Fortaleza, paciente com 16 quilos acima do peso, ou anemia severa, sendo colocado em máquina. Gerando óbito.
Denúncias encaminhadas para o canal interno, simplesmente vão fazer supressão, falsificar, adulterar todo tipo de documento.

Relatos de práticas de gestão de reputação e pressão:
No Ceará, a DaVita usa funcionários para produzir vídeos e conteúdos que apresentam uma imagem positiva da operação, usando redes socais para melhorar a reputação, os funcionários possivelmente são obrigados a fazer isso, mesmo sabendo das irregularidades da DaVita Tratamento Renal. Isso inclui uso Perfis Falsos e Compra de Avaliações Positivas.

Sua segurança e a de outros pacientes importam.
O que fazer agora:

1. Documente tudo: datas, horários, nomes de profissionais, fotos (quando permitido), cópias de prontuários e comunicações.
2. Exija o prontuário por escrito.
3. Denuncie formalmente:
   o Ministério Público Federal e Estadual
   o Anvisa (vigilância sanitária)
   o Polícia Civil (ameaças, perseguição ou indícios de [Editado pelo Reclame Aqui])
   o Conselho Regional de Medicina / Conselho de Enfermagem
   o Defensoria Pública e Procon do seu estado
   o OAB (quando houver intimidação jurídica)
   Compartilhe este alerta com outros pacientes e grupos de diálise. O silêncio pode prejudicar quem ainda está em tratamento.
   Se você está passando por qualquer dessas situações, denuncie hoje pelos canais oficiais. Não deixe que a narrativa seja distorcida contra você.

Não seja o próximo óbito

Nos contratos da DaVita Tratamento Renal, há relatos de rompimento com o Hapvida. A DaVita alega insustentabilidade financeira e valores defasados diante da alta dos insumos. Na prática, quando não consegue cumprir o mínimo, a empresa cancela atendimentos ou tenta operar sem insumos de forma irregular, ocasionando mortes e falhas no tratamento, com as denúncias de desvio e p.e.c.u.l.a.t.o de medicamentos, além de f.r.a.u.d.e.s em procedimentos. Está mais difícil operar desse jeito. A DaVita Mondubim e outras pelo Brasil, passou anos operando de forma irregular, desviando remédios, gerando ó.b.i.t.o.s, sem estrutura, sem máquinas, está tendo prejuízos ao se adequar as normas da RDC 154.

Aos pacientes, continuem denunciando, cada denuncia pode está salvando uma vida.

A DaVita tem que parar de r.o.u.b.a.r o SUS e m.a.t.a.r inocentes.

 

U.m.a m.á.q.u.i.n.a d.e ó.b.i.t.o.s e f.r.a.u.d.e.s i.n.s.e.r.i.d.a no .S.U.S

Tbh, she pisses me tf off. I love my grandma, me and my girlfriend help around the house, with money and chores, I always say “yes”.

The issue with her is
She refuses to understand there are things I can’t eat or trying to eat less. And that I have a menu.

Everytime she cooks some form of protein. It’s LOADED with vegetables, cooked with the meat or chicken.

Or I want rice, she makes it with peas and corn, NO.

I’m way too strict about my diet I know but it WORKS and my labs are perfect. And I want to keep it that way.

I told her a million times when she’s cooking, just leave me 2-3 blank pieces of whatever it is, beef, fish, chicken.

She got angry at me a couple of times saying like “bc of you I can’t cook or eat anything in this house” and that really hurt my feelings bc who tf gave you that idea ? Cook whatever tf you want for you and let me cook for me. But she doesn’t, she cooks the whole protein, and then gets angry at me for picking at it or just avoiding it all together.

What do I do ?

It’s coming to a point where I come back home and the chicken that me or my gf bought is turned into a potassium mess. It’s like she put all the worse things.
(Which taste amazing don’t get me wrong but I want to live)

And also she LOVES to put those salty condiments and spice mixes. Even tho I say again and again pleaseeeeee for the love of god enough with those processed JUNK condiments.

Please some advice ?

(Note: she’s young and perfectly lucid so it’s not like she forgets what I say or that I FORCE her to cook for me. Not at all anything like that)

Hi everyone,

I've been on peritoneal dialysis for 9 years. For most of that time I tracked my exchanges on paper. When I tried something digital, it always felt like too much setup for something I have to do every single day.

So I built my own app. Not to ship a product — just because I wanted something that would get out of my way. Open it, log the exchange, close it. Done in under a minute.

It's called dialysisPal. It keeps your session history and lets you export to PDF or CSV for clinic visits. That's it — no extras, no noise.

I have been using it myself for about a year now and felt it was time to share it with fellow patients.

If you're still on paper or not tracking at all, I'd love to hear what you think: App Store link

So my moms been on dialysis since march of this year. For the most part she doesn’t really complain about the dialysis treatment ritual itself but rather the back pain she gets afterwards. Well It could be from the treatment itself or sitting in the chair for 4 hours or a combination of both. I asked the dialysis center for advice but they said just to give her Tylenol which doesn’t always help. Is there anything I can do for her regarding the back pain? Maybe a heating pad? Back massage ? Any advice would be appreciated

Just started my dialysis treatments first three sessions went off without a hitch the 4th session the nurse infiltrated the vein with my arm fistula, so I had to stop for the weekend the arm is still a little sore I'll be okay for my next session right? I really don't want to get the heart catheter it seems really scary.

Has anyone had heart failure and kidney failure? If so what’s the experience been like you guys?

Going to call my nurse about this tomorrow but I’d figure I’d ask on hers too

I’ve gotten lost dwell of 30 minutes for the past 4 nights now (using claria PD cycler at home) and I’ve been getting some drain pain pretty regularly, sometime it’s super painful.

I’ve also recently moved my machine further away from me so I don’t have to listen to it but I was getting drain pain before that

Any advice? Has anyone else experienced similar problems? I read about changing ‘tidal settings’ but I think my nurse has to do that from the clinic. Thanks for reading.

Hi, first of all I'm sorry if I make some mistakes, English is not my first language.

My dad is in his 70s and it's been 4 years that he do dialysis 3 times a week. Since he started, he fell into depression, he don't go out often, only if he has medical appointments, he's constantly exhausted and can't do anything. He also has pulmonary disease and he's on oxygen almost everytime, so it's became very difficult for him to enjoy life like he did before. He spent almost all his time in the living room watching TV or sleeping and it's worse when it's school/university period because we're home only the night, so his days are very repetitive and I can see that he's struggling with his mental health.

I want to help him by doing some activities for him, or just how can I help him in everyday life to feel better. If you have any advices, suggestions, ideas I will be very grateful