u/Diligent-Low-7983

Hey everyone!

for context i’ve always dealt with anxiety/paranoia and health anxiety. recently in December my partner had what i thought was a cold sore and what he thought was just a “pimple”. it’s still not confirmed that it was a cold sore but im like 90% sure it was😭 anywho, he gave me oral that day before i could even notice the bump on his lip. i still have not had an initial outbreak yet. no multiple sores, no flu, swollen lymph nodes, itching or burning. 2 weeks after this encounter i did see him again but i started feeling weird and i couldn’t tell if it was anxiety or real symptoms at the time. but still no sores that alerted me to get swabbed, i had one red spot on the posterior fourchette that faded away in 3 days but we had just had sex 4 days prior and it was rough so i blamed it on friction. fast forward 3 months i did a blood test and it’s HSV1 positive. now, my mom dad and uncle get cold sores and i don’t recall ever having one unless i had one as a kid but i have kissed A LOt of ppl and i know it could be oral as well. now my question is, how do i deal with the constant anxiety of not knowing? one of my most toxic traits is that i always feel the need to be in control. not knowing the location is driving me nutssss and my brain automatically goes to the worst case scenario.

1. i have a bad habit of constantly checking even after i feel a small tingle. for those who are hsv positive is it necessary to check everyday or do you just know when you have an outbreak or when you’re getting one?

2. what are your prodrome symptoms like? how can you distinguish a tingle from sweat or anxiety vs an incoming herpes outbreak

3. i’ve been having nerve pain all over my body (lightning butt and lightning crotch as well) not too sure if this is even related to hsv but did anyone get constant on and off pinching feeling in the vagina? it’s been happening since jan for me, not everyday but multiple times in a month. ( also started and stopped birth control within this time frame so idk if it could be that)

4. how do you deal with the anxiety around the diagnoses? i’d love to hear some positive insight or discolour stories

5. lastly, anyone wanna be friends? lol i feel so lonely at the moment and my anxiety kicks in right when i wake up and the last 5 months have been so tough. i have absolutely no one to talk to, not even the guy who could’ve given me this shit 😭

hello everyone just wondering if anyone experienced anything similar ?

i might have had an exposure to GHSV1 back in december. i was on birth control at the time. 2 weeks after the exposure i started experiencing a pinching lightning crotch feeling which i still get til this day. i had intercourse again after 2 weeks and 4 days after i noticed a small bump but didn’t seem herpetic to me tbh. no pain or itchyness , no flu , it disappeared in 3 days. i think it was due to rough sex. anyways , fast forward 3 months - as of march 9 i started experiencing weird shooting pain from the legs down to the buttocks. this pain was also accompanied by a burning nerve pain too. after a few weeks i noticed the shooting pain / burning started to spread around to my upper body too. at first i was thinking could this be endo? idk. it matches the symptoms of Fibromyalgia really well and apparently HSV can cause fibromyalgia. although i didnt have an outbreak since this started so idk if its herpes related at all. i did a blood test and it was positive for HSV1 but my whole house has cold sores so i wasn’t surprised at all tbh, ive also kissed a lot of people in my life. i dont see a lot of people experiencing this issue, but the shooting pain was so bad yesterday and today and ive also been getting a lot of migraines too. ive been extremely stressed the last few months over this and i know it could be caused from stress too. i’m just in so much pain everyday i wish i could know what it was. I have a dr appt booked but the tests/results will probably take a while.

hello everyone just wondering if anyone experienced anything similar ?

i might have had an exposure to GHSV1 back in december. i was on birth control at the time. 2 weeks after the exposure i started experiencing a pinching lightning crotch feeling which i still get til this day. i had intercourse again after 2 weeks and 4 days after i noticed a small bump but didn’t seem herpetic to me tbh. no pain or itchyness , no flu , it disappeared in 3 days. i think it was due to rough sex. anyways , fast forward 3 months - as of march 9 i started experiencing weird shooting pain from the legs down to the buttocks. this pain was also accompanied by a burning nerve pain too. after a few weeks i noticed the shooting pain / burning started to spread around to my upper body too. at first i was thinking could this be endo? idk. it matches the symptoms of Fibromyalgia really well and apparently HSV can cause fibromyalgia. although i didnt have an outbreak since this started so idk if its herpes related at all. i did a blood test and it was positive for HSV1 but my whole house has cold sores so i wasn’t surprised at all tbh, ive also kissed a lot of people in my life. i dont see a lot of people experiencing this issue, but the shooting pain was so bad yesterday and today and ive also been getting a lot of migraines too. ive been extremely stressed the last few months over this and i know it could be caused from stress too. i’m just in so much pain everyday i wish i could know what it was. I have a dr appt booked but the tests/results will probably take a while.

for the last 2 months right after i stopped birth control i’ve been having this annoying constant back shooting pain that radiates to both my legs , down to the knees and feet. this last ovulation i had this weird heaviness sharp cramp feeling for 2 days. today my leg and back pain was even worse! really sharp pain 😭 it’s also accompanied by a burning feeling as well and ill get pelvic cramps along with a lightning crotch feeling. it’s almost like a sharp quick pinch or zap in the vagina. this is honestly driving me insane 😭 i did a pelvic exam and i didn’t hear back from my doctor so im assuming she saw nothing serious. i’ve always had really bad periods but this started after i stopped birth control (alysena 21) that i was taking for 3 months (the birth control also gave me constant cramps for those 3 months and made me spot for a month straight) anyone else experience anything similar ? i wish i could just know what’s causing this but apparently it could be manyyyyy things