u/DingDong_I_Am_Wrong

This is mostly a rant.

I've had SO many challenges in my life. From 16 on I had mental health problems that I struggled with until my late 20ies (and still do to an extent). Anxiety, panic attacks, being unable to leave the house, episodes of heavy depression, etc .

When I finally got that under control and was somewhat happy with my life I was studying and working so had almost no free time. During that time my dad got diagnosed with cancer. Shortly before finishing my bachelors degree in early 2022 I had a burnout and couldn't work for half a year. End of 2022 my dad died of his illness. Then came a crazy long and exhausting inheritance process that cost a lot of nerves and lasted until the beginning of 2026... End of 2025 I got my Hashimoto diagnosis and now I am dealing with severe weight gain, heat sensitivity, palpitations, tiredness, you know it.

I was SO ready to finally enjoy life and do fun things and now I feel like shit and have to deal with yet another issue.

At least my doc today seemed competent. Yes, I cried in his office. He said he will always check fT3, fT4, TSH, TPO, TG and also supplements if necessary. He will not just check if they are in range but also if they fit my age and the state of my thyroid. He said I should take supplements specifically fitting for this condition. He said we'll get to the weight once my thyroid is stabilized which I guess makes sense. I know my weight is still in range but every day turned from "what do I feel like wearing" to "what can I still wear". Clothes that were too big a year ago are now too small. I don't want to always buy new clothes because what do I do in half a year then? I might just switch to dresses... Which I usually never wear.

I didn't have time to ask all my questions and I still wanna meet with a dietitian and look at the whole picture but it's a start. My thyroid apparently looks normal.

I'm just so tired, I want to enjoy life and not have to deal with something but every time I can almost grasp it there's something preventing me from just living. I know I should probably start therapy again.

If any of you feel the same way I am deeply sorry. It is hard! If any of you have suggestions how to deal with this (other than obviously therapy) let me know.

Alright, so I was diagnosed with Hashimoto in October after 3 years of being craaaaazy tired, unable to concentrate, gaining 8kg out of nowhere,... Ya know the symptoms.

My doctor checked TSH, fT3 and fT4. TSH was at 14, fT4 was slightly low. So I go do an ultrasound and schedule a scintigraphy. First the ultrasound guy said there's no sign of Hashimoto. A week later scintigraphy guy said he doesn't believe that, does another ultrasound and lo and behold: clear signs of infection (more blood pooling)!

After all the procedures I go home and get a letter that says I have Hashimoto, TG-AK of 595 and should take medication. I go to my GP, he says "yep, here's your medicine, take it and everything will be fine!" so I go do that.

Then in February I go to my GP again to check my levels. TSH is at 1.76 and then he apparently only checked T3 (0.79) and T4 (7.31), tells me all is well and I don't need to do anything. I ask if I should go do another scintigraphy, he says no clue probably not. I try to ask a few questions but he's stressed and has no time and isn't of any help.

So far that's all the information I got.

I feel way better but I'm still more tired, sometimes can't concentrate, sugar makes me tired as heck, I'm still gaining weight, after a workout I need 3 days rest, I don't trust my body, I don't know if I can go on hikes with my bf because I don't know if my body will handle it,... And I have no idea where to go and who to talk to because nobody told me!

So I call to get another scintigraphy and talk to someone who might have answers there. I almost cried on the phone because I feel so helpless with this.

And I only just realized that my GP only took T3 and T4 the second time?! Why the heck would he do that??? Especially since he took fT3 and fT4 the first time?!

The most frustrating thing about Hashimoto is that nobody tells me what this does, how it might progress, what to do, what to be wary about,... Nothing! I researched a lot myself but I feel so left alone by the doctors, it's insane!

I'm pretty sure I'll cry at that appointment because of all this. And they say to avoid stress...

Hi guys!

I've been diagnosed with hashi about half a year ago (onset probably end of 2022) and was then basically sent home with meds and no more information. I looked up a lot online...

I have the first doctors appointment where I actually get to ask some questions. What are your suggestions? What did you wish you had asked sooner?

I want to ask about my weight gain. Since 2022 I gained around 15kg and that's not normal for me at all. My TSH and hormones look good but I'm still gaining. So that's gonna be a topic.

Other questions: what can I expect going forward? How will this progress? What lifestyle changes do I need to make? Should I get tested for any other autoimmune disease? Do I need to be more careful with my workouts? Are there any foods I should avoid?

So if there's anything else I should ask please let me know!