r/Hashimotos

My TSH, t3 and t4 all come back normal, but i still don't feel right. my doctor says the fatigue and sleeping likely has nothing to do with my thyroid and i have no choice but to believe him. I'm just not even sure what's normal and what isn't anymore

I’ve just had my TSH checked for the first time since starting LDN 3 weeks ago and it’s risen from 2.2 to 4.4! I thought LDN was meant to lower TSH, not increase it. Has this happened to anyone? I don’t want to stop it because 4.4 is not even that high and this might be temporary, but does this happen in some people? Thanks so much!

I wanted to ask people what “movement hacks” or systems they use on days where their energy is completely gone.

Some days I’m productive and active, but other days I feel like I got hit by a truck. Not just “I don’t feel like it,” but more like mentally and physically heavy. On those days I end up barely moving around, and then I spiral into feeling guilty and wondering if I’m just lazy or weak.

People always say “be kind to yourself,” but honestly I struggle with that because part of me feels like I’m just making excuses. It also doesn’t help that I feel like I’ve become way too sedentary lately (joint pains) and have started gaining weight.

So I’m curious what practical things people actually do to reduce friction and get themselves moving when motivation and energy are low. Tiny habits? Rules? Environmental tricks? Apps? Walking while doing something else? Accountability? Anything that helps stop the “do nothing all day” spiral.

Especially interested in hacks that work when your brain feels like it’s fighting you and everything feels harder than it should.

Just wondering because I was bedridden the last year plus from this.

I’ve had hashimotos since I was about 5-6, and now I’m 18M. Ive been only on T4 all of my life until about 1+ year ago I tested low on my T3. Since then my doctor upped my T4 from 100 to 125. My T3 remained low, TSH was very low and T4 was normal. Now I’m on 112mg of T4 and on my most recent blood test I had these results:

TSH: 0.29 (normal: 0.27-4.2)
Free T4: 15.8 pmol/l (normal: 12.0-22.0)
Free T3: 2.8 pmol/l (normal: 3.5-7.7) Low
TPABs- 23.1 (normal: 0-34)

My new endocrinologist has finally prescribed T3 and he’s prescribed me 20mcg twice a day and I was wondering is that not too much? Aren’t you supposed to start slow and then gradually increase? But to be honest I’d rather it be too much and then gradually decrease it rather than it not being enough because all of my symptoms are unbearable at this point and I just want to finally feel normal.

Also, how come my antibodies are normal? I remember testing them 2 years ago and they were high. And I want to point out that my ferritin, vitamin D, B12, selenium, iodine is all normal. I have a clean Whole Foods diet and take magnesium, vit d and iron supplements. Recently though I’ve been eating terrible because I feel terrible no matter what I eat anyway and I’ve been eating Whole Foods for so long so I just want a break until my T3 medicine arrives.

And since my antibodies aren’t high, and all my bloodwork is fine. I just don’t understand why I have a conversion issue. I’m not anorexic and I eat enough daily fat. Why after 11 years has my body decided to stop converting T4? That’s what baffles me. Although, ive had an iron deficiency most of my life but even then my T3 was fine. Now my iron is fine but my T3 isn’t. My liver function is normal from bloodwork. Is there something I’m missing? I’m asking because people usually say that you should treat the root cause or make lifestyle changes in order to fix T3 and taking a T3 supplement is like last resort. What other lifestyle changes could I make?

I was recently diagnosed and my endocrinologist asked if I had any recent or prolonged high stress events? I said yes. No details were shared with her. But I am either totally misunderstanding now 2 months of research or my partner is refusing to consider or hear what I’m trying to share.

We’ve had a very up and down-toxic marriage the last couple of years. It started as a major betrayal of trust, and has continued with so many unchanged behaviors. Without going into the weeds of it all-he has agreed that his behaviors and unchanged patterns have caused great harm to both me and our kids. He is in therapy, but any change feels slow coming or non-existent.

When I was diagnosed I felt upset. Angry even. I tried to very gently share with my husband how I felt like these marriage problems were a huge contributing factor to what turned hashimotos on. Do I know definitively? Of course not. There’s no way to know. Obviously.

Am I saying “you gave me hashimotos?” Again-no, I understand I was predisposed genetically- and I’m not even saying his behaviors are the ONLY stress or that his behaviors are the only problem in our marriage. I’m simply be honest that this has been truly the most stressful devastating 4+ years of my life, the blows never stop coming despite promising I’m great length what exactly will change moving forward, and it’s caused great emotional distress.

I feel very upset that his issues that should have never been something we were dealing with in the first place -let alone to be dealing with them for as long as we -feels like it directly a part of, and “turning on” or activating the auto immune disease.

He could not handle me sharing this of the few times I tried. And yesterday told me that “Even his therapist says that’s not true. I am not to blame.” Followed by hours of arguing of me saying I didn’t say you’re only to blame. I said I feel very upset that I believe with every fiber of my being this prolonged stress on my body from your behavior has a huge toll on activating the auto immune disease. I also don’t like he weaponized his therapist says, when literally my DOCTOR said otherwise and apparently my doctors words hold zero weight. But his therapists opinion does.

So just curious- is this hog wash? I’ll admit the first time I saw a trendy Tik Tok or Instagram reel that was like “show me an adult that had childhood trauma they suppressed-and I’ll show you an adult with an autoimmune disease” I felt triggered. Blamed. Similar to what I’m hearing him say. But just because things are sometimes hard to hear or take time to process doesn’t make them untrue. Everything I’ve read says stress is the most common cause of turning on auto immune disease. Followed by virus’ like Epstein bar, etc.

I just want to be heard.
I just want to be validated.
I just wanted the person who claims to care so much about me-to CARE about my well being and stop the shitty behavior that is giving me so much stress. (Invalidating me. Interrupting me. Talking over me. Defensive responses. Lying. Gaslighting.)

I'm a 26yr old male and I take Synthroid 125, this medication does nothing for me. Even today my face is really ugly, nasty pale skin, and extremely bloated looking. I always have fatigue, can't do anything without caffeine. My life has been completely ruined by this disease, Hashimotos. Yes, there are people out there who absolutely cannot function on Synthroid. I literally have zero energy, mood issues, sleep issues (can't breathe well in bed), stomach issues - always bloated after eating almost anything.

And nothing is helping currently which is why I'm looking for someone new. I've tried Tirosint, does nothing even why trying to take a lot of it at once. Tried liothyronine generic and that also does nothing. I went to a new Endo and told her that I need to be on brand name liothyronine, the generic just does not work. I take Synthroid every morning and it doesn't do dick and my life sucks ass for years now. Can't take it anymore.

Anyone else have these issues? Anyone else life ruined on Synthroid? I know people won't let your talk about your real issues in the medication on here. I don't really see anyone mentioning anything that's that helpful.

Hi friends! Newly diagnosed here and still trying to figure things out!!!
I think I’m in the thick of a flare right now, and am wondering if any of you have any tips for relief? My main symptoms are muscle soreness and weakness after little to now activity, brain fog, and zero appetite. Also extreme fatigue, like the my arms feel heavy and I feel like I can’t catch a full breath kind.
I work 12-hour night shifts in healthcare and am struggling right now! My shift last night was no joke 😅 Just curious what others are doing for this!? Like supplements, anything really. I had a full iron/ferritin panel done when I was diagnosed which came back normal and I’m not on any thyroid meds yet. Thanks in advance!!!

Hi fellow Hashinoto's friends, was wondering if anyone with Hashimoto's have tried rolling fasts?

Weight does not budge even if I eat once a day so I'm trying to make longer fasts. I have PCOS as well and really motivated to get some of the weight off.

I started my rolling fast and just eat every 3 days and wanted to know if anyone has done it or have experienced long fasts.

Please share your experiences!

I went to the ER 2 nights ago because my heart rate was consistently in the mid to low 30s for a couple of hours. I am 55F and healthy (other than Hashimoto’s and Sjogrens.) I’m not an athlete. I’m on Levo and my TSH is currently at 1.0 which is a good spot for me.

My doctors don’t know what is going on but I’m wondering if it’s my thyroid.

Anyone else have a low heart rate related to Hashis?

Thanks!

I just got my labs done after starting levo and everything was looking better except for my iron sat going from 23% to 9% (range 15-55) and my ferritin also dropped a bit from 69 to 29 (range 15-150). Anyone else experience this?

What supplements do you take for Hashi’s and swear by? Just curious what everyone loves and why.

As a male being diagnosed with Hashimoto's it sometimes feels like I am alone, because when I check some articles and groups the advices are usually for women because the condition is prevalent in women. So I am wondering if for example myo inotisol works the same. Do you have any tips and tricks for males with Hashimotos?

Hey? Does anyone with hashimotos take vitamin D and have you found it helpful with sore legs? Also has anyone had flare ups from accidentally eating or drinking something with sugar and you find yourself feeling heavy, exhausted and most of all very sore legs? What do you do, just avoid the sugar the best you can?

Hi all, I have been on levo for 10 weeks. I am finally functioning, but not close to normal. I have tried to exercise by doing easy 20 min walks, or some bodyweight strength on a yoga mat, but if I do more than that I crash for several days. I am doing a lot better than I was 4 weeks ago, and before that, but I just need some hope. I feel like I am getting better at snails pace. I don’t think I will be able to work for another few months until I can stand for longer periods. I have read online that around 3 to six months is when big changes happen. Is this true? Any experience or advice is appreciated! (Also all my iron, vitamin D, and B12 labs are good. I am not necessarily asking for advice about med management, just about experiences of when stamina improves)

Does anyone with Hypothyroidism have sensitivity to heat instead of cold?

I used to have raynauds before my Hashimoto's kicked in and now it's almost completely gone because my body is hot majority of the time now.

I’ve been diagnosed with Hashimoto’s since my teens, and it’s now been over 20 years. I’ve taken levothyroxine almost the entire time. I only went up on my dosage once, and out of the numerous times I’ve done bloodwork, my levels were only off once.

I knew I was low on my prescription, so I tried ordering it a few days ago. It’s now been three days without my meds and only now does the pharmacy tell me my prescriber refuses to fill it. I call the doctor’s office and they chide me because I haven’t been in a year. They will not refill my prescription until I go in tomorrow. Oh, and I have to fast for bloodwork, so let’s make that appointment at the crack of dawn.

Considering it’s day three without thyroid replacement, I feel like crap on a cracker. I can barely find the energy to do anything. I feel weary to my bones.

I know none of this is a huge deal, and I’m sure the doctor is just trying to be responsible, but this feels unfair for some reason. I’ve never had a doctor hold a prescription over my head like this. I don’t even like this doctor, because they always have me see a nurse practitioner, and got weirdly shame-y when I had an abnormal pap (thank god my gynecologist — who I found after — is an angel). They also looked at me sideways when I asked about medical marijuana, which I was interested in for chronic migraine, but wanted to be responsible before just going to some random weed doctor. I have like 5 specialists though, so it’s a pain to find a new primary.

I’m so sick of being this reliant on a medication. Usually, Hashimoto’s is something I can almost forget about, because once I treat it it’s very low maintenance. I feel like raging even though my energy is in the dirt. I hate this condition.

Hey everyone!

Has anyone experienced extremely dry skin on their hands? To the point where it looks like I did that thing with Elmer’s glue — it’s enough to peel away. Is this part of Hashimoto’s?

Hi all!! I’m sure it’s been asked before but I’m looking for a bit of clarity!! I’m (25F) being investigated currently for abnormal TSH levels that came up through an unrelated investigation (7.5-10.6 in the last 2 months). My thyroid peroxidase levels are over 900 but my t4 levels are fine (have reduced within the last 2 months but still within an acceptable level). I’ve been told to come back sooner if I have symptoms but I am struggling to distinguish what could be a symptom and what is just life / what I’m used to. I recently moved and live a very intense life at work and in my personal life so am tired almost all the time. I’ve got a history of anxiety and have a relatively high heart rate anyway. When I moved in March I experienced a month of being so tired I have no idea how I actually functioned. No matter how much sleep I got it felt like my bones were pulling down on me and I was falling asleep at my desk by 2pm every single day. This has eased off and I can get through my day without falling asleep but have found I’ve felt so much less strong in the last few months and find my workouts much harder than I used to. Even when I get a great nights sleep I can happily nap once or twice a day and it won’t impact my night’s sleep. I have gained weight too in the last year but have just put it down to having a tough year and growing up. My concentration isn’t the best and I definitely experience brain fog in varying degrees but again put it down to the stress of work / living situations. I’ve run cold for a long time (other than during workouts / uk heatwaves) and tend to lose a lot of hair but I have a lot of hair so that hasn’t felt weird to me! My most recent doctors appointment with the increased tsh has been left with testing again in a few months unless there are symptoms but I just don’t know! I know I’ll likely need treatment within the next few years due to the rate that my t4 is changing and peroxidase levels. If anyone has any insights that might help I’d be really grateful!