Anyone having this constant symptom?? I can't talk with anyone. Everything I am doing is stabilizing my air hunger and thinking of it 24/7. Everytime I'm trying to say a word or two I feel sooo exhausted and must catch my breath.
What do I do?
I had my levo dose up before 6 weeks.
I take vitamin D, selenium, zinc and Mg. Started taking b12 too.
Hi everyone. I’m a 21F, 5'6, 193lbs and currently being evaluated for Hashimoto’s. I’m feeling really discouraged and was hoping to hear from people who’ve been through something similar.
Over the past several months/ max last 2 years, I’ve gained about 50 pounds despite being very active and training regularly. It feels like my body is completely resisting weight loss no matter what I do.
My recent labs showed:
TSH: 4.73 (high)
Iron saturation: 13% (low)
Free T4: 1.2 (normal)
Free T3: 3.4 (normal)
I’m also taking Zoloft 50 mg and recently started Wellbutrin XL 150 mg because of the weight gain, cravings, and fatigue.
For those of you who were eventually diagnosed with Hashimoto’s
-Did your symptoms start with a TSH around this level?
-Did you experience rapid weight gain or feel like your body wouldn’t respond to diet and exercise?
-What tests or symptoms finally led to your diagnosis?
Many thanks!
TSH 12.3
T4 1.07
Free T3 2.0
Thyroid antibodies 49
Vitamin D 48
Ferritin 41
Highest TSH I’ve ever had
Currently on 100mcg synthroid
When I was on 225 mcg synthroid my tsh was <1 and my free t3 was still @ 2
Does this mean I need to add t3 most likely?
Really needing to feel better! Would like to take armor thyroid just not sure which dose to start if I’m taking 100mcg synthroid currently
I’m the most hypothyroid I’ve ever been in life now! I feel so validated now for gaining like 40 pounds in 3.5 months and know it’s not my fault. I knew I was going to go hypo to be able to take t3 but sheesh this is the highest my tsh ever was and I’m medicated now. I can’t believe I’m able to do anything! When I was first diagnosed it was 4 and I was really bad. I’m proud of myself for surviving this hell
Would t3 increase my free t4 as well?
Hello, I had been on a medical journey to find the cause of my off balance and dizziness spells and after MANY tests and every doctor you can think of, the only numbers out of range were from my thyroid. So after 5 years I thought the mystery was finally solved!! My endocrinologist diagnosed me with hypothyroidism and put me on levothyroxine 25mcg. Took the pill as directed every day at the same time on empty stomach then waited at least an hour to eat. Did more bloodwork to see updated TSH and antibody results, and my numbers did go down but I am still experiencing the off balance and dizziness so I thought maybe I would need a higher dosage. My doctor said the numbers are looking better but didn’t recommend getting a higher dose but since I still had symptoms she would wait a few more months on the meds and check again. She also said depending on those results she might take me off levo, when I thought I was going to have to take it for life which confused me. I think it might be due to her diagnosis of hypothyroidism instead of hashimotos?? I am worried I do have hashimotos and her taking me off the medication will just destroy all the progress I have made. (Test results in photos) Should I seek a second opinion?
If you are interested these are some of the testing I have had done with other doctors (all of which came back with no significant findings):
-eye exam x2
-CT scan of head and neck x2
-MRI of head and neck
-various bloodwork
-neurological electrical test
-cardiovascular ultrasound, EKG, ECG
-ear nose and throat dizziness/balance test
I am 44yo F. I recently developed vitiligo. My dermatologist told me that thyroid issues are more common in people with vitiligo.
I went to my PCP and had labs drawn. I found out that I am iron deficient with a ferritin of 2.
Additionally, I was told I have Hashimoto thyroid disease.
TSH 2.494
T4, free 0.79
TPO 186
Thyroid Ultrasound Next week.
I really don’t know what to think about any of this. My doctor offered to put me on a low dose of Synthroid-if I was having symptoms. Which I find interesting, since my TSH and T4 are normal.
I am trying to process all of this information. Any advice would be appreciated
Hi everyone long time lurker, first time poster. I've had abnormal thyroid since 2017 and when the first abnormal tests came in, my doctor was extremely concerned and wanted to monitor it. Naturally, they proceeded to NOT monitor it until late 2025. I've lost a lot of my life in bed depressed, fatigued, and in pain. Now that my antibodies are past 300+ I am finally getting medicated. It's been a few months since starting Levothyroxine and I'm wondering when it gets better. I'm still treated as though I'm lazy whenever I go in for check-ups, I've requested referrals to endocrinologist, only to be told that I'm not sick enough. My right thyroid is slightly enlarged, my hormones are jacked up and I am still experiencing extreme fatigue. There are more good days than there used to be, but I can't help but feel neglected by my care team. And its hard to trust someone who knew something was wrong and didn't do anything about it for years while I was struggling and vocal about it. I talk to my insurance more than I talk to my doctors at this point.
I guess my question is, has this happened to you? What should I do? Is it time to find a new care provider? Is there anything that I can say that will make my current provider give me the testing I need/want? ( I'd like to have an MRI to check my pituitary gland, and regular 3/6 month thyroid testing).
I can't stay in bed for the rest of my life, and I don't want to.
Thank you in advance for any advice you might leave, or just for reading.
TLDR; Want advice on how to deal with CARE TEAM NEGLECT. Not asking for medical advice, just asking how to deal with medical professionals or if anyone has had a similar experience.
I’m just so confused.
My fertility doctor found my TPO antibodies and told me I have Hashimoto’s. At the time, my endocrinologist didn’t seem concerned because my TSH was only 2.5. My PCP didn’t seem concerned either… it was like “Yep, you have Hashimoto’s,” and then everyone just moved on.
Fast forward to now: my TSH climbed to 4.6, so I started levothyroxine. But even now, no one is talking about the Hashimoto’s itself. The only thing anyone seems focused on is getting my TSH into range.
No one has really explained what Hashimoto’s means, what’s happening inside my body, or whether any of my other health issues could be related.
Over the last three years I’ve:
-Gained about 30 pounds.
-Had A1C rise to 6.0.
-Developed seasonal allergies and food reactions that I never had before (hives)
-Been diagnosed with psoriasis.
-Lost a significant amount of hair, including my eyebrows (they sometimes grow back).
I just feel like my body is spiraling. I have the moon face, the buffalo bump I feel like a hot mess.
Three years ago, I saw a GI doctor because my digestive system was a mess. She actually wanted to test me for celiac disease, but life got in the way and I never followed through. Looking back, that’s around the time all of these other issues started showing up.
So now I’m stuck. I scroll Instagram and all I see are people talking about gut health, inflammation, autoimmune disease, and “reversing” Hashimoto’s trying to sell a diet or supplement. Then I ask my doctors, and they’re like, “Your diet/exercise doesn’t matter. It’s autoimmune. Take your levothyroxine.”
Like what am I supposed to do with that??
I’m not looking for a miracle cure. I just want someone to explain what’s happening to me, look at the whole picture instead of treating every symptom separately, and tell me what actually has evidence behind it.
I’m exhausted, confused, and honestly heartbroken. All I wanted was to get pregnant, and somehow I’ve ended up with fertility issues, Hashimoto’s, psoriasis, insulin resistance, hair loss, and a body that doesn’t feel like my own anymore.
Can someone please tell me… what do I do?
37y/o female here. Have been on synthroid brand for 6 years and I would like to come off. I eat pretty healthy, am gf, and try to do the things my body needs/loves. Synthroid and going gf has helped most with brain functioning and mental fog.
Hoping to hear success stories of coming off thyroid hormones.
I can’t tolerate thyroid meds, tried splitting the lowest dose on levoxyl tried splitting the lowest dose of armour. I feel like it just builds up in my body my chest hurts my heart pounds head pressure anxiety. I give up im so emotionally drained this is ruining my life. This has been on going for more than two years. My ferritin is low and i am working on it taking 60 mg every other day. Can anyone recommend something? Thanks
Long story short I’m trying to get pregnant. I was taking 120mg of armour and the IVF doctor said because my TSH is .01 he thinks I might be overmedicated. I dropped down to 105. My fasting T3 is now 2.2 and my T4 is .95. TSH .019. Do you think I’m under medicated because Armour suppresses TSH? Should I try Tirosint? I’ve been on Armour for so long and feel fine, though have never felt like I’ve had typical symptoms of hashimotos/hypothyroid.
If Hashimoto’s is an inflammatory disease caused by the immune system attacking the body, why aren’t we seeing immunologists? I am euthyroid right now so the main focus for me is inflammation for now. Hypothyroidism and how hormones are affected is a conversation that’s coming but I am realizing it may not be the FIRST one I should be having. Wouldn’t it make more sense to see a specialist for the immune system?
I’ve noticed most of us are sent to endocrinologists REGARDLESS of the status of our thyroid’s ability to make hormones or not and this seems like the worst case scenario out the gate. Why?
And again, I don’t buy the BS of “waiting and seeing” by my endo and primary care provider, which effectively translates to waiting for the damage to my thyroid to become so great that I become hypothyroid. We should obviously be more proactive than this.
I understand what the role of an endocrinologist is, but still…that seems like a specialist for later if I am euthyroid. It also makes sense why endos have done nothing for me, because they are the WRONG specialist for now.
I was studying IL-6 as that is the interleukin cytokine that was mentioned in my needle aspiration biopsy…that was the “evidence” to diagnose me with Hashimoto’s in the first place. Then, I asked google if the immune system does a balancing act like hormones do? The answer was yes, so then I asked what could counter IL-6 and discovered up-regulating IL-10 can quiet IL-6. Since autoimmunity happens when the immune system becomes dysregulated, I asked if re-regulating the immune system could cure autoimmunity? The answer was “theoretically and functionally yes”, especially if caught early before too much tissue damage is done.
They are sending us to the wrong specialists and running out our clocks. I am not making accusations, I am just stating facts. This is unacceptable of more can be done. We should be screening earlier and seeing immunologists!
And btw, everything holistic medicine discusses fixing with dietary and lifestyle changes seems even more scientifically valid to me now. Consistent sleep cycle? More IL-10. Improved anti-inflammatory diet? More IL-10. Exercise? IL-10. Fiber and probiotics? BINGO! IL-10!
IL-10 can be inflammatory in some contexts, but the point I’m trying to make is there’s more to look at and discover! There’s more than just waiting for things to get even more bleak!
Hello, newly married here and very newly(days ago) diagnosed with hashimotos. I am 31 and I am getting mixed signals about this disease. Being diagnosed was both exciting to have answers yet somewhat scary with the uncertainty. Since telling my husband, he has had a difficult time with me being “sick”. On the complete opposite hand my sisters say it’s not a big deal and to not feel sorry for myself… and advice or insight to this life with hashimotos?
Thank you so much
I already know through trial and error that I can’t have gluten, soy or dairy but there must be more since it feels like eating food is a game of Russian roulette. Either I feel fine or I lie awake at almost 6am feeling like hot garbage and wondering where I went wrong.
My doctor never even told me there’s a correlation between food intolerances and hashimotos so there’s that (I also have other diagnosis so idk if the food aspect just got pushed aside because of that). I know I can get tested for things like celiac which I do intend to do but I’m someone who grew up not going to doctors (mom is anti vaxx and anti science) so do excuse my ignorance. Can I just get a test and get a list of foods I can’t eat? Or do I need to trial things at home and see what happens? I’m asking because it seems logical that I can get a test but I’ve also heard about people cutting out almost all foods to then reintroduce foods bit by bit until they end up with a list of foods they can’t eat.
Tldr can I get tested for all food intolerances at a doctor’s office or do I need to do it at home?
It’s Fourth of July. I can barely even ride along in the car. My neck feels so swollen on and off that it’s giving me anxiety with feeling like I’m wearing a turtle neck. Headache.. eye sensitivity… I seriously feel hungover everyday of my life. I hate this life so much. I’m so mad I have hashimoto’s and hypothyroid. There’s so much I want to do with my life. There’s so much I want to do today with my kids. I want to make memories. I want to be able to run. I want to be able to want to do things besides be bed bound. So much time is wasted. Why does this not qualify for disability. So much I’m losing time, money, memories.. stollen from me because of this. I hate this disease. Why did it have to happen to me. :’(
Needed to let that out along with some tears
Feel free to vent below if you need to
Hi! First of all, I recently stumbled across this Reddit forum, and it has been so comforting and reassuring, connecting with so many people who also have this condition! Such a wonderful community! This might be a little TMI, but does anyone else suffer from G.I. issues? After I got my Hashimoto‘s diagnosis I have noticed a pretty drastic change and now constantly struggle with severe stomach pain and diarrhea. I have gone to a G.I. specialist and got a colonoscopy, ruled out crohns and celiac. I have also started the anti inflammatory diet (no gluten and dairy especially) and are taking probiotics. I have ended up losing quite a bit of weight (30 pounds) and it has a major impact on my quality of life and definitely does not help with fatigue and anxiety. Just wondering if anyone else has experienced something similar, and any tips? Thank you!!!!
I’m a 20-year-old male with Hashimoto’s, but my thyroid function is still normal (TSH, free T4, and free T3 are all within the normal range).
Is developing hypothyroidism eventually inevitable, or is it possible to keep my thyroid healthy long-term by getting my anti-TPO antibodies as close to zero as possible and never needing thyroid medication?
I’m curious if anyone has managed to stay euthyroid for many years despite having Hashimoto’s, and whether lowering anti-TPO levels actually changes the long-term outcome.
Ive been to about 6 different doctors, i take selenium, l-glutathione, digestive enzymes, probiotics & nothing is helping my food intolerances. I cant eat anything, i react to everything possible which has developed into ARFID and the only thing i will eat is grilled chicken nothing else. I recently went to the GI doctor and told her all my symptoms and she didnt even seem shocked or like eager to help me. Its not normal that im reacting to normal healthy vegetables, non wheat grains, fruits and meat and dairy. Im losing hope slowly my life is so miserable
TL;DR: I was wondering if anyone had any experiences with (specifically hormonal) birth control and Hashimoto's disease they could share, since I haven't really seen anyone talk about it before.
Long version: I have Hashimoto's and Hypothyroidism, and I'm thinking of getting on a birth control to regulate/completely avoid getting my period. I've always had difficult periods, ever since I first got it. (I'm talking nausea, muscle weakness, joint weakness, hot flashes, dizziness, even fainting. If it's awful, assume I've dealt with it lol). At one point, I went to an OBGYN, and ultimately pursued a different avenue for multiple reasons, one of which being my worry that it would interfere with my already complicated Thyroid issues.
It worked for the most part, but they're still painful and a nuisance, so I was wondering if anyone had any experiences with it. To be clear, I am NOT asking for medical advice--any decision I end up making would be with the help of my doctors. I just feel like there's so much mysticism around thyroid health and medications (if i had a nickel for every time a doctor waved my problems off with "it's just your hormones", as if hormones are pixie dust and not a legitimate and vital part of the body!!) and I was wondering if anyone had any experiences they would feel comfortable sharing.
If it's relevant, I want to clarify that I am thinking of going on birth control purely for reasons surrounding my period. It's not about controlling birth at all, so alternative forms of birth control like contraceptives are not what I'm looking at. Thank you in advance!
i read so many conflicting reports about it so idk. is it really effective? i have hashimotos & and antibodies that indicate autoimmune gastritis (but no deficiencies)
she claims that i can get more autoimmune diseases if i don’t keep the diet
how valid is this? any resources?
I’ve been making my own salad dressing since I can’t find an acceptable store-bought one that doesn’t cost a fortune. Most recipes call for extra-virgin, but I’ve been using avocado oil. I knew extra-virgin would harden in the refrigerator, but to my surprise, avocado oil is doing it too. What about liquefied coconut oil? I know coconut is OK but what’s the story on the liquefied stuff? They must have done something to it.