Medical Neglect?
Hi everyone long time lurker, first time poster. I've had abnormal thyroid since 2017 and when the first abnormal tests came in, my doctor was extremely concerned and wanted to monitor it. Naturally, they proceeded to NOT monitor it until late 2025. I've lost a lot of my life in bed depressed, fatigued, and in pain. Now that my antibodies are past 300+ I am finally getting medicated. It's been a few months since starting Levothyroxine and I'm wondering when it gets better. I'm still treated as though I'm lazy whenever I go in for check-ups, I've requested referrals to endocrinologist, only to be told that I'm not sick enough. My right thyroid is slightly enlarged, my hormones are jacked up and I am still experiencing extreme fatigue. There are more good days than there used to be, but I can't help but feel neglected by my care team. And its hard to trust someone who knew something was wrong and didn't do anything about it for years while I was struggling and vocal about it. I talk to my insurance more than I talk to my doctors at this point.
I guess my question is, has this happened to you? What should I do? Is it time to find a new care provider? Is there anything that I can say that will make my current provider give me the testing I need/want? ( I'd like to have an MRI to check my pituitary gland, and regular 3/6 month thyroid testing).
I can't stay in bed for the rest of my life, and I don't want to.
Thank you in advance for any advice you might leave, or just for reading.
TLDR; Want advice on how to deal with CARE TEAM NEGLECT. Not asking for medical advice, just asking how to deal with medical professionals or if anyone has had a similar experience.