u/DinosaursAreFriends

Hi, my CRP is between 5 and 8, depending on how I feel. It seem to be tightly linked to my flare-ups. I am on LDN which helped with fatigue but did not lower my CRP and I am trying very hard to raise my ferritin levels which are on the ground. I am considering GLP-1 because having such high CRP for years is kinda dangerous. Has anyone tried it for the same reason and saw measurable result? (decrease in CRP). It seems that my CRP is much higher than in other long covid patients based on studies I read. And I really want to tackle it.

I have been diagnosed with POTS based on standing test and 24h EKG holter in Europe where Im from. Now I live in the Bay. I got a referral from my Stanford Cardiologist. They refused me and sent me to the neurotesting lab to do a battery of tests (including tilt table, sweat test, cardiovascular test). I need to get off of my Ivabradin for that which is super scary because it keeps my fatigue at bay. I am a long covid patient and my symptoms are mostly mild unless im in a flare up and then it is brutal, and I can hardly walk. But if they dont catch me in a flare up I am scared my diagnosis will just not show up. I am also scared I am not severe enough to get an appointment. What is your experience with that clinic? Did they give you something else than beta blockers/Ivabradine? I already have those. Thank you!