u/Dismal-Evening3186

▲ 6 r/iih

Getting hair dyed after lp

Hello!! I am getting a lumbar on july 9th and want to get my hair done july 12th, everything I've looked up says that this would be okay but i want to know if people who have been diagnosed longer and have more experience with this condition could give me some advice on if this is a good idea.

Update : i have rescheduled the hair appointment to the 7th of july!!! Thank you so much for the advice!!

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u/Dismal-Evening3186 — 2 days ago
▲ 9 r/iih

Basic tasks

Since i have been told i have IIH doing basic task like, brushing my hair, taking a bath, getting dressed, grocery shopping, cutting my nails, and things of that natural have become impossibly hard and make me feel like im going to pass out does anyone have any tips or tricks that they use to make everyday tasks easier?

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u/Dismal-Evening3186 — 7 days ago
▲ 3 r/iih

Doctors are confusing me

Ive had a doctor tell me i have IIH by a Neruo Ophthalmologist, however a regular neruo did an mri and is now saying i dont have it and im so confused because i have the symptoms and i had the diagnosis but now im being told that i dont have it??

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u/Dismal-Evening3186 — 10 days ago
▲ 2 r/iih

Constant pain

Since i got diagnosed like a week ago ive had this horrible headache that will not go away ive been taking my meds like needed and it just wont stop. It mostly happens at the end of the day or mid day ig, but it makes me almost bed ridden and its just horrible. Does anyone know any tricks to help with it. Its like a sharp stabbing pain on the top of my head and behind my eyes and it radiates into like the tip of my nose. Its also pulsing.

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u/Dismal-Evening3186 — 22 days ago
▲ 11 r/iih

Laying down

I read online that it's best to lay at an angle to help with the headaches and i was just wondering if anyone found that to be true?

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u/Dismal-Evening3186 — 28 days ago
▲ 9 r/iih

New to this?

Hi im new to this and idk even know if this the right place to put this, but recently i was diagnosed with iih im only 17 and im wondering if it goes away or if im just supposed to live it. It feels like my life is ending and i have no idea what to do. Im sorry if im doing this wrong this is the first time im posting on reddit

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u/Dismal-Evening3186 — 29 days ago