u/Distinct_Channel_135

Hi everyone. We are a UK family, and I would be so grateful for your experience. Our little boy had a brain injury at birth and is tube-fed, and he is doing well enough that we have a chance to take him to the US for a promising treatment trial. He is stable and cleared to fly.

For those who have travelled internationally, or to the US, with a medically complex little one, how did you sort the insurance and repatriation side? We are finding ordinary travel insurance will not cover a trip taken for a medical reason, and what we care about most is being covered for an unrelated emergency while away and, above all, being able to get him home to the UK if anything happened.

Would really value hearing:

1. What insurer, plan or membership you used, and whether it actually paid out or helped when needed

2. How you handled repatriation cover specifically

3. Any tips for flying and managing tube feeds and equipment

Thank you, this community's experience would mean a lot.

Hi everyone. We are a UK family, and I would be so grateful for your experience. Our little boy had a brain injury (HIE) at birth and is tube-fed, and he is doing well enough that we have a chance to take him to the US for a promising treatment trial. He is stable and cleared to fly.

For those who have travelled internationally, or to the US, with a medically complex little one, how did you sort the insurance and repatriation side? We are finding ordinary travel insurance will not cover a trip taken for a medical reason, and what we care about most is being covered for an unrelated emergency while away and, above all, being able to get him home to the UK if anything happened.

Would really value hearing:

1. What insurer, plan or membership you used, and whether it actually paid out or helped when needed

2. How you handled repatriation cover specifically

3. Any tips for flying and managing tube feeds and equipment

Thank you, this community's experience would mean a lot.