u/Doctor_braniac7407

Hi, I use the wristband. I originally bought it because I would be able to wear it on my upper arm. Didn't turn out to be the case. I stuck with it until I started having extreme pain in both of my wrists, which turned out to be carpal tunnel. I now have wrist braces because of it. I am looking for an alternative to the actual band, not the sensor. Something that is softer and not textured. I have the skin-drawing condition, dermatographia. So certain pressure and movement will trigger a histamine reaction. Any suggestions?

So I just got diagnosed last Friday. This is my 5th autoimmune diagnosis. I've been collecting since I was 10, and I am 21 now. I have other chronic illnesses that aren't autoimmune. My autoimmunes are celiac, Hashimoto's (developed into hypothyroidism 8 years later), Sjögren's, and psoriatic arthritis (2 months ago), now SLE. ffs. I would also like to note that my doctor is not easy to diagnose lupus with; they make sure to check off boxes. Clift came back positive; the farr is just taking a really long time to come back.

I am usually great at telling what condition is flaring. Hashimoto's joint pain and Sjogren's joint pain feel different and come with different symptoms than the flare. I was able to pick up on the difference easily. Everything has gotten worse, and I don't know which is which. I can tell when it is Sjogren's when I have dry symptoms with it, but other than that, I don't know where the psoriatic arthritis begins. And now, lupus. Am I supposed to get a different flare in each system each time? The only time that I can put a thumb to a past abnormality that didn't fit a virus or any of my other issues was a lung issue that I had.

I had this medical binder full of all my issues when I first went to college, due to my epilepsy. So if I had a seizure, someone will have all of the information. Now I am updating it 6 diagnoses later and one of the things that we put under all of my diagnoses was how they would look to others. I've had a medical emergency with Sjogren's, or honestly lupus. I'll ask my rheumatologist and cardiologist. But, it hit me while I was working on my binder, I don't know what to expect and that scares me.

Before I start, this isn’t a Pro-Choice and Anti-Abortion debate. Please don’t get on me for making a politics post because a lot of people who use this medications are being impacted and might lead to arrest in some places.

Methotrexate is used for cancer and autoimmune disease. It also causes birth defects and is used to abort ectopic pregnancies.

We see a lot of policy being in place to enforce family planning instead of contraceptives/abortions and not covering/preventing people from getting abortion medication from multiple ways and trying to come up with ways to track who is getting the meds. Jail time for the healthcare providers and patients. I’ve been hearing about patients with RA and/or Sjogren’s are getting denied methotrexate. I heard from people who work in oncology that cancer patients are being denied methotrexate in red states.

As much as I hate methotrexate with how it makes me feel and hoping that my new Rhuematologist will put me on something else for my severe joint pain, I can’t help but be scared. There is this bill that is looking at people who get insurance through the federal government to see if they ever had a medication that is used for abortions. Has anyone else dealt with the hard time of getting medication because of the bans? Or even this fear?

Hey, I have dermatographia that is also triggered by heat. I also have an allergic reaction (more hives) to medical grade adhesives. It is not related to the dermatographia, no lines come from it until I scratch or remove the adhesive. I have heard how people with dermatographia were able to get a tattoo. I was looking to get a small dopamine molecule. My main concern is the bandage around the tattoo after. I have reactions to a certain bandage that covers some IVs. Are there any other ways to cover the tattoo that is safe? I don’t have anyone close to me who has this condition.