Ongoing Issues & Acceptance
Background: diagnosed in early 30s, after having stomach issues for over 20 years.
I have been fully gluten-free for nearly 6 years, since my diagnosis.
I try to stay positive about celiac -- while being gentle and real with myself about the struggles.
I read this article. It talks about how quite a few celiacs are still symptomatic, years into the diagnosis.
I am one of these.
I am careful, only eat at home, etc. I don't think my issues are due to continued exposure.
While I am not constantly sick in the bathroom and breaking out in severe rashes like before diagnosis, I still feel...pretty sick...pretty often.
I very much relate to people talking about autoimmune diseases and energy limitations. I easily get weak, tired, nauseated. I find I can't "do too much" in a day without paying for it.
My ferritin is still on the low side. Working on that, and hope it will help.
But yeah, I guess I am at a point of acceptance with my situation. I believe that my body was pretty damaged by the time I was diagnosed. Maybe my healing will take longer, and maybe certain things will always be a little off.
(Disclaimer: I am not a professional. It is important to speak to your doctor about ongoing symptoms. There may in fact be solutions to your issues.)
I was frustrated for so long. And now I'm trying to just be at peace with it, and do my best, one day at a time.
If you are one of the people who feels totally better after diagnosis, I am genuinely happy for you. That's amazing.
If you are more like me -- 100% gluten-free, and still suffering, you are not alone. Sharing this to hopefully offer you validation.