r/Celiac

It’s just so annoying that when I go to parties or events, someone else gets jealous of the food that I bring. I went to a friend’s birthday party and they were all eating cake. I got my own small gluten free donuts in my bag so I wouldn’t be left out, only for someone at the party to go, “Hey, how come she gets donuts! I want some!” Please, you have huge slices of cake for yourself, I would give this up in an instant. I’ve had other instances where I’m required to go to an event with food, and there’s actually something I can eat, for once, only for it to be finished because I was stuck at the back of the line. One time there were Reese’s cups that were individually packaged, and there were 2 left. I didn’t get anything else at the event, and I went to take both when someone else came and took the second one saying that it was for their friend. You and your friend got full plates of food and cupcakes and you want to take away the one option 😭 Another time I went to another event with food and there was another celiac there who got gluten free cupcakes, but she kept them in the regular food area and let people who could eat gluten take them, and I was pretty sure they got cross contaminated. It just sucks that people have to take the one option we have, including the 20 other options they have, just to leave us with nothing :( Has anyone else had similar experiences?

Edit: I need to give some context. In the situations I just talked about, the majority of people knew about my celiac and they were aware of the fact that I needed to be gluten free. Some did not, and I can’t blame them for anything I discussed above. Sometimes I’m able to talk to the event manager and they’ll let me take a plate first, but other times the event is so big that it’s not possible to coordinate.

Videogames and reading seems too much at the moment

while at dinner my dad got water down the wrong pipe and while trying to get it down spit and it landed on my face after just eating bread 🫠 i immediately washed my face and stuff and appear to be fine but it would be such a stupid way of getting sick

so i have a wedding next weekend - my step sisters - and they will not have food for me (confirmed by caterer) (super awesome). so i was told to either bring my own food or eat beforehand. i do plan on bringing food as eating beforehand and being in a place for 7hrs without a real meal sounds like a personal hell.
but im not exactly sure what the best course of action is?? all i can think of that will be easy is a sandwich but if anyone has ideas to make it easier or a way for me to not just bring a freakin cold sandwich, i would love to hear them!!

I was sent an article which I copied a small portion here. Its worth looking into IMO. To me explains why the poor working immune system.

I copied a part of an article by George Citroner:

Celiac disease has long been attributed to an overactive immune response to gluten. However, a study recently published in Immunology and Cell Biology suggests there is a reduction in immune activity that starts much earlier and runs much deeper.

The research focused on a type of immune cell called CD4 helper T cells. These white blood cells are to immune cells what sergeants are to soldiers—they give orders and help coordinate the body’s immune response, fight infections, and support antibody production.

The surprise wasn’t that these cells were overactive. They were actually weaker, producing less of a key immune signal called interleukin-2, dividing more slowly, and less likely to survive. This pattern held regardless of sex, how recently someone was diagnosed, or how long someone had been gluten-free.

Ok so ive been diagnosed for about a year now and I've been missing some cereal I'm tired of chex 😫 but I was reading Reese pieces cereal and it doesn't say it has wheat or barley in it.it say it's made with rice flour but there's no thing in the box saying GF is it safe or is it a risk that I might not want to take as they look so good and everything else I've had that Reese's seem to be safe .

Note. I'm in Canada sooooo idk if it's different in USA

I’ve run into some weird lab results lately that had me scratching my head:

1. Very low ferritin levels, 14.5 of whatever the standard unit is
2. Very low bone density, bottom 3% for my age and gender
3. Very low muscle mass, bottom 5%

All this is in spite of eating a healthy diet with ample protein and leading a highly active life, working out regularly and walking/ hiking a ton.

I was looking into my symptoms and was kind of shocked how well they align with celiac disease. A lot of other stuff I go through as well like weeks long episodes of daily headaches and random fatigue followed by weeks of feeling normal, sometimes waking up feeling sore in the morning for no reason, seems to be a common occurrence to people with celiac.

Moreover, I eat a fuck ton of gluten. Like seriously, my diet is incredibly gluten based so the nutritional malabsorption that happens to celiac people would definitely be happening to me if I did have it.

I dunno, am I jumping the gun by suspecting this? Should I mention it to a doctor, or should I just cut out gluten for a few months and see if it helps? The one thing that makes me think it might not be is I don’t really get an upset stomach eating bread or other wheat products, in fact bread is one of my favorite foods.

I always heard that tavelling gf in Japan is so hard. And I know I have to bring my own soy sauce and a gluten-free-restaurant-card in japanese. But I looked for Osaka, Kyoto and Tokyo in the Find me glutenfree app and there are sooo many restaurants listed. Aren't they safe or why is it so hard to find sth to eat nevertheless?

OK, I know like Toronto is a Haven for gluten-free and vegan options.

But I’m having a hard time, looking up gluten-free and vegan options that are together because I’m also allergic to the proteins in Dairy and Egg. I’m specifically looking for coffee, shops, bakeries, and cafés.

What are some of the best gluten-free and vegan cafés and bakeries in Toronto? I’m choosing not to bring my car so I’m hoping it’s walking distance from Union Station, or I can take the street car.

Thanks everyone! I’m still gonna do some research on the side, but I would love to know some Torontonian opinions!

Has anyone filed for GF as a medical expense? According to celiac.org, the net cost of GF food can be claimed as a medical expense for tax purposes. That seems like a lot of work. Has anyone done this?

Edit: https://www.reddit.com/r/glutenfree/comments/1tqo4e0/fsahsa_for_gf/ someone posted this topic in more detail here. Specifically about using a FSA to pay the difference in costs for GF food. It seems to be a mixed bag whether it works or not or is worth the effort.

So about seven months ago, I made a post on this subreddit discussing how my mother glutened me over christmas to, in her words, "see what would happen." All in all, just a horrendus situation.

Since then she's been making I guess a more visual effort to make things safe for me to eat, I have designated seperate food bin, I make a lot of my own meals, I work in a clean space, yeah everything is fine and dandy.

Until last night, we had family dinner. My mother made enchiladas and because I didn't learn from my mistakes last time my mom used glutenous tortillas for my personal serving, and I couldn't see it. As I was eating, I was a bit confused because the tortillas were a different texture than I was used to but its also been a long time since I've eaten them, especially hot. So I ate two.

And two hours later I was standing in my bathroom vomiting uncontrollaby because I had insane burning all through my upper GI during the previous 30 minutes. And I won't get into the whole after ordeal but I'm just so angry.

I inspected the tortillas and figured out pretty quickly that she didn't use the gluten free ones and I. I'm so tired. I'm tired, I'm angry, I'm shivering from the vomit, and there is this weird part of me that just doesn't care. I know its bad that she did this but the only thought I can string together is "whatever."

I will also say, I'm pretty scared. Not of her but more the gluten reaction. This was my first time eating highly concentrated gluten in almost a year. I've been crossed contaminated and eaten things that have been processed with wheat, but I feel like I really had a reality check.

Anyways gluten sucks, this whole situation sucks, people who vomit from a microscopic amount of gluten you are some of the strongest soldiers out there, and I'm excited for gluten free goldfish. That's it.

Also apologies for any spelling errors or confusion, I wrote this like three hours after the vomiting and sleep deprevation and brain fog is hitting me like a truck.

I officially got my positive diagnosis today? I’m obviously overwhelmed but what are some things you wish you knew after getting diagnosed?

How did you decide how much precautions you were going to take? Shared kitchen vs not. Eating products made in a factory that may contain gluten?

Do you eat gluten occasionally to prevent worse reactions in case you accidentally ingest it?

I’m also seeing a dietitian, did that help anyone?

I am a teacher, untenured at my current place.

They just removed all appliances from rooms and made a communal spot for appliances they will provide. While CC is minimal when cared for…100 teachers are not going to make sure they don’t leave an absolute mess everywhere.

I just left my doctor with a note saying I need a separate area for myself. How would you go about phrasing your HR email?

I don’t want to have to overly explain myself but I also don’t want to just say “hey, here’s this doctors note, see ya in 2 weeks”. Any thoughts?

I’ve got a 11 hour flight from Chicago to Greece ahead of me and I’m trying to decide between American and United/Lufthansa. I’d like to pick the option that might have better celiac meal in the main cabin since they are basically the same flight. I’ve never flown international before so I’d love to hear anyone’s experiences!