Feel like I’m crazy after seeing my GI
Hey guys, sorry for a slightly long and probably all over the place post but I need to rant or vent or something, and my baby is next to me so I am trying to type fast before he wakes so my grammar is going to be horrible.
So for a little background, I live in a VERY small community where we have literally only 3 GI doctors.
Switching is not so easy, I have tried a few times to no avail from my GP. If I wanted to go to another area with more GI specialists for my crohns, that is over a 5 hour drive each way, so not that realistic ( but the thought has crossed my mind).
I have been diagnosed with crohns for almost 5(?) years now, I’ve been on a few biological previously that haven’t helped. The most recent I was having absolutely terrible joint pain, there was times I couldn’t stand up and if I could I didn’t trust myself to do so holding onto my baby as I thought I would fall. I had just seen my GI and when I mentioned this there wasn’t even any sign of acknowledgement that he had heard anything I was saying, instead he seemed to only be more interested in informing me the importance of breastfeeding over formula. There are medical reasons as to why I use formula, as far as I’m concerned that conversation should stop as soon as it no longer has regard for the form of treatment for my crohns. I have seen him many times and my concerns were never heard. I have had symptoms that continued to get worse for years and I am at a loss on what to do.
This most recent time when I seen my doctor I was given a new medication, and it was decided that I would need another scope. Before seeing him my next scope was set to be November but after seeing him it has been moved to sometime after January. He has been saying I am likely in a bad flare now for a few months, why on earth would this be getting pushed ?? My follow up I was told that would be in a few weeks time, I called to schedule and was told I can’t come in until a few months time if it is not urgent based on his notes. Everything I am being told is contradicting each other constantly.
I was given tdm papers many times, but it was improperly ordered. I just had paperwork filled out and on it there were two options to choose from. The first one being is this a permanent disability expected to last throughout the life and the second one being is this a prolonged disability expected to be recovered from. Why was the option for prolonged chosen, last I checked and was told crohns is a permanent chronic condition. I understand remission may happen at some point, but that doesn’t mean everything is gone forever.
A few months ago I was prescribed a injection for my crohns, later at my follow up and every follow up before switching medication, he had argued and fought with me raising his voice how the medication I’m on doesn’t exist, even as he had wrote the prescription.
I truly feel as though I am going crazy everytime I see this doctor, there is not one appointment I have not left in tears and just recently when I seen him I feel like something In me snapped. I had just broke down, questioning why I even bother going to see him, I don’t have faith or trust In him any longer with my crohns and I just feel totally defeated. I am sitting here, feeling the worst I have since before I had my diagnosis, no colonoscopy in the near future, no medication as I’m currently waiting on approval, wondering how I can finally convince my GP to send me to a new doctor.