u/Due_Tonight4365

Hi all! For those of you who have had a shoulder surgery, and now have decreased range of motion following the surgery… How much has it impacted your life? What can’t you do anymore?

I’m considering a capsular tightening surgery due to instability caused by a traumatic dislocation 7 years ago in my right shoulder (loose capsule visualized on MRI and mechanical instability in assessments but only a few subluxations per year, not continuing to dislocate). Because I am mildly hyper mobile the surgeon stated she usually tightens it a little bit more than the average person because it is more likely that I will stretch with time.

Right now I have full range of motion with pain… and I expect decreased range of motion with less pain after surgery.

For those of you who have decreased shoulder range of motion, was it worth it? What can’t you do? Is your pain less?

Thank you. I’m so scared for this surgery! But 7 years of pain and instability has been disabling to say the least!

Hi all!
I’ve (35f) had a horrible chronic injury for 8 years and finally a doctor is offering me a treatment! My shoulder was traumatically dislocated 7 years ago and it’s been unstable and in incredible pain since.

I’ve gotten a few opinions and both surgeons agree I have instability and anterior capsular laxity (on MRI). They both agreed plication of the anterior capsule will likely help my stability and pain.

I can’t find many patient testimonies online which really help to give me confidence so I’m hoping to find some here. Anyone have a similar surgery?

I also want to know that I am naturally hypermobile, but my other shoulder is just fine. And I understand it may stretch out again so that’s a risk I’m willing to take, but I’m most concerned about stiffness and the pain that may be associated with being overly tightened… any experiences with this?

Edit: i’ve done several rounds of physical therapy over and over, it causes so much pain that I’ve consistently been unable to progress. So at this point, I have failed out of conservative treatments.

Hi all!
I’ve (35f) had a horrible chronic injury for 8 years and finally a doctor is offering me a treatment! My shoulder was traumatically dislocated 7 years ago and it’s been unstable and in incredible pain since.

I’ve gotten a few opinions and both surgeons agree I have instability and anterior capsular laxity (on MRI). They both agreed plication of the anterior capsule will likely help my stability and pain.

I can’t find many patient testimonies online which really help to give me confidence so I’m hoping to find some here. Anyone have a similar surgery?

I also want to know that I am naturally hypermobile, but my other shoulder is just fine. And I understand it may stretch out again so that’s a risk I’m willing to take, but I’m most concerned about stiffness and the pain that may be associated with being overly tightened… any experiences with this?

Edit: i’ve done several rounds of physical therapy over and over, it causes so much pain that I’ve consistently been unable to progress. So at this point, I have failed out of conservative treatments.

Hi all!
I’ve (35f) had a horrible chronic injury for 8 years and finally a doctor is offering me a treatment! My shoulder was traumatically dislocated 7 years ago and it’s been unstable and in incredible pain since.

I’ve gotten a few opinions and both surgeons agree I have instability and anterior capsular laxity (on MRI). They both agreed plication of the anterior capsule will likely help my stability and pain.

I can’t find many patient testimonies online which really help to give me confidence so I’m hoping to find some here. Anyone have a similar surgery?

I also want to know that I am naturally hypermobile, but my other shoulder is just fine. And I understand it may stretch out again so that’s a risk I’m willing to take, but I’m most concerned about stiffness and the pain that may be associated with being overly tightened… any experiences with this?

Edit: i’ve done several rounds of physical therapy over and over, it causes so much pain that I’ve consistently been unable to progress. So at this point, I have failed out of conservative treatments.

Hey everyone! 35 year-old female, who has been experiencing chronic pain for far too long. It’s hard to feel part of the world.

I want to feel a sense of community but have just been so isolated due to being in so much pain all the time. I would love to connect other folks who are in a similar situation! I’ve created a few support groups for other things in the past and they’ve been so helpful.

Does anyone on here have any interest in joining a chronic pain discord? Or virtual meet up? Or do you know of any that already exists?! ❤️‍🩹🫂

Hey all,
I’m 35yo f just found out I have spinal stenosis and my chord is being compressed. I’m gutted. Shocked and honestly so freaking scared.

It’s been a little over a week since I found out. My arms tingle and I feel weak in my grip, excruciating life altering pain and have for years now and was misdiagnosed. Still Waiting to see specialists. It’s all been so overwhelming…

Long story short it’s been hell, but so many of you have made me feel less alone! Because of that, I created a discord for others in a similar situation to support one another. If you’re at a similar age or not! Please feel free to join so we can be there for each other more directly 💜

I may start a virtual support group down the line when I have capacity, but this is a start! 🫶🏽

Edit- Due to the disheartening comment from one mean redditor, please DM me for the discord link. Not posting it publicly.

**Please tell me- how did you cope with learning about your neck issues? I have bone spurs, bulging discs, and stenosis in my cervical spine. Am I really so abnormal to have all of this at 35 y/o? I’m gutted.**

******It’s hard not to feel like this MRI is just a horrible sentence to a life of just more pain and more suffering.**

I’m a 35f, never had neck injury but have been dealing with severe debilitating pain in R shoulder due to what I thought was shoulder instability from a traumatic dislocation 7+ years ago. Doctors always shrugged their shoulders at me. No help. No insight despite me advocating and fighting for years.

FINALLY an orthopedic surgeon asked to see my cervical neck via imaging… and lo and behold…. MRI shows \*\*degeneration\*\* abnormal for my age.

I’m already so deeply exhausted from my shoulder injury; already feel so unable to do life and ADLs. And NOW my cervical neck is another issue?\*\* \*\*Potentially part of the issue all along?

\*\*Im so scared.\*\* How will I do it? I’m so exhausted already and I’m in pain every damn day. Am I too far gone? How long will it take to progress to a worse off place? Will I be forced to have surgery and lose range of motion and further decrease quality of life? Can I lose mobility soon, down the line? Paralysis? (I have so many scary thoughts and questions, it’s so overwhelming).

\*\*\\\*\\\* MRI FINDINGS \\\*\\\*:\*\*
\*\*SPINAL CORD\*\*: No cord signal abnormality. Slight flattening of the cervical cord at C5-C6 related to spinal canal stenosis.
\*\*DISCS\*\*: Mild multilevel disc desiccation.
\*\*BONES\*\*: Straightening of the cervical spine with slight kyphosis centered at C5-C6.
Normal vertebral body height. Marrow signal is normal.
\*\*\*C5-C6:\*\*\* \*Disc osteophyte complex. No significant neural foraminal stenosis. Mild to moderate spinal canal stenosis.\*
\*\*\*C6-C7:\*\*\* \*Tiny disc osteophyte complex. No significant neural foraminal stenosis Mild spinal canal stenosis.\*

Please tell me- how did you cope with learning about your neck issues? I have bone spurs, bulging discs, and stenosis in my cervical spine. Am I really so abnormal to have all of this at 35 y/o? I’m gutted.

Its hard not to feel like this MRI is just a horrible sentence to a life of just more pain and more suffering.

I’m a 35f, never had neck injury but have been dealing with severe debilitating pain in R shoulder due to what I thought was shoulder instability from a traumatic dislocation 7+ years ago. Doctors always shrugged their shoulders at me. No help. No insight despite me advocating and fighting for years.

FINALLY an orthopedic surgeon asked to see my cervical neck via imaging… and lo and behold…. MRI shows **degeneration** abnormal for my age.

I’m already so deeply exhausted from my shoulder injury; already feel so unable to do life and ADLs. And NOW my cervical neck is another issue?** **Potentially part of the issue all along?

**Im so scared.** How will I do it? I’m so exhausted already and I’m in pain every damn day. Am I too far gone? How long will it take to progress to a worse off place? Will I be forced to have surgery and lose range of motion and further decrease quality of life? Can I lose mobility soon, down the line? Paralysis? (I have so many scary thoughts and questions, it’s so overwhelming).

**\*\* MRI FINDINGS \*\*:**
**SPINAL CORD**: No cord signal abnormality. Slight flattening of the cervical cord at C5-C6 related to spinal canal stenosis.
**DISCS**: Mild multilevel disc desiccation.
**BONES**: Straightening of the cervical spine with slight kyphosis centered at C5-C6.
Normal vertebral body height. Marrow signal is normal.
***C5-C6:*** *Disc osteophyte complex. No significant neural foraminal stenosis. Mild to moderate spinal canal stenosis.*
***C6-C7:*** *Tiny disc osteophyte complex. No significant neural foraminal stenosis Mild spinal canal stenosis.*

Please tell me- how did you cope with learning about your stenosis? Am I really so abnormal to have all of this at 35 y/o? I’m gutted.

It’s hard not to feel like this MRI is just a sentence to a life of just more pain and more suffering.

I’m a 35f, never had neck injury but have been dealing with severe debilitating pain in R shoulder due to what I thought was shoulder instability from a traumatic dislocation 7+ years ago. Doctors always shrugged their shoulders at me. No help. No insight despite me advocating and fighting for years.

FINALLY an orthopedic surgeon asked to see my cervical neck via imaging… and lo and behold…. MRI shows degeneration abnormal for my age.

I’m already so deeply exhausted from my shoulder injury; already feel so unable to do life and ADLs. And NOW my cervical neck is another issue?** **Potentially part of the issue all along?

Im so scared. How will I do it? I’m so exhausted already and I’m in pain every damn day. Am I too far gone? How long will it take to progress to a worse off place? Will I be forced to have surgery and lose range of motion and further decrease quality of life? Can I lose mobility soon, down the line? Paralysis? (I have so many scary thoughts and questions, it’s so overwhelming).

** MRI FINDINGS **:
SPINAL CORD: No cord signal abnormality. Slight flattening of the cervical cord at C5-C6 related to spinal canal stenosis.
DISCS: Mild multilevel disc desiccation.
BONES: Straightening of the cervical spine with slight kyphosis centered at C5-C6.
Normal vertebral body height. Marrow signal is normal.
C5-C6: Disc osteophyte complex. No significant neural foraminal stenosis. Mild to moderate spinal canal stenosis.
C6-C7: Tiny disc osteophyte complex. No significant neural foraminal stenosis Mild spinal canal stenosis.

I had a traumatic shoulder dislocation 7 years ago and I’ve been dismissed and minimized by doctors for way too long- my pain had been severe and unbearable!

Finally a shoulder surgeon said the tingling in my arm and pain in traps muscles sounds cervical.

Lo and behold per the cervical spine MRI I have a disc bulge, bone spurs, spinal Cord flattening and stenosis in my cervical spine (all in C4-C7) as well as kyphosis and dehydrated discs. I’m fucking terrified. I’m 35 y/o and have been pushing thru the pain for years due to minimization. I’m gutted. I just want my life back.

I want to lift weights again, carry my groceries again and wear a backpack without killer flairs.

Has anyone anyone else in my boat?! Are my results that bad!? (I’m waiting to see doctor in a few days but it’s torture waiting and I’m just hoping I’m not alone and maybe someone else has healed from damage like mine?)

I’ll post MRI results in comments don’t know how here 💜

I’m struggling with kaisers system! Hoping someone has promising reviews on this doctor!!?? (Or any Kaiser doctor in the Bay Area?)

Has anyone here successfully submitted and received accommodations at work for endo?! And if so can you let me know how your functional limitations were described?

My doctor said my only option is intermittent FMLA but I have a disability and want accommodations for flair days so looking to push back… would love to hear from you!