Advice?
Ok I’m gonna try to explain the best I can, sorry if this is just a bunch of word vomit, but pretty much I’m 23(f) and I was born with severe congenital hip dysplasia (ddh I think it’s called?).
I was born without a left hip socket, and my right hip socket was extremely shallow. It wasn’t found until I was 3 years old which of course led to me getting 4 surgeries between the ages of 3-8. My last surgery was just the doctors taking out the plate and pins that held my new socket and bone in place. I was told that I was all fixed and shouldn’t really have any issues. I still had to do check ins with the dr who did the surgeries every 2 years after that but besides that no more hospitals which 8 y.o me was excited about.
Until I turned 9 and started to notice that after a few hours of running around and playing my hips would feel funny. I didn’t think of it much, my parents and drs told me it was just “ghost pains” as they would put it so I wasn’t really worried. By the time I hit my teens my hips would start hurting after maybe an hour or two of just standing/walking, let alone running. I would try to tell my parents but they just said it was all in my head. When I was 16 at one of bi-annual check ups I mentioned everything to my doctor. To say he was dismissive would be an understatement. He pretty much said oh that happens if you have surgery on your hips, you’ll also probably be more susceptible to arthritis in your 30s to 40s. Worse case scenario being ending up in a wheel chair.
Pretty much this is how it’s gone with every dr I try to talk to about my hip issues since. Either I’m told there’s nothing wrong (despite calcification being found in my hips recently), it’s in my head, or that I should just try to work out more.
I turn 23 in 8 days. I can’t stand or walk for more that 5-10 minutes without severe pain. I constantly have this feeling of popping and grating in my left hip. Some days I can’t put any weight on it, others it will pop really loud and I can’t move it at all. I’m just at a loss of what to do because nobody believes me or seems to want to help me. I don’t know what to do or who to even reach out to.
If anyone has any similar experience or advice pls let me know, sorry for the essay lol