r/hipdysplasia

PAO during medical school?

Anybody have experience with juggling a PAO during medical school/graduate school? Debating deferring a year or squeezing it in next summer during my only summer I officially have off for the next several year. Any input is appreciated!

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u/pizzzzzzzzzza12 — 1 day ago

Too mild for surgery

I met with a hip preservation surgeon today, who performs PAOs and arthroscopy. It was Dr. Anthony at Penn Medicine.

He said my LCEA is 22 degrees on left and 24 degrees on right, and that it’s not severe enough to warrant PAO.

I do have a labrum tear and he said he might perform surgery to fix the tear.

I’m just concerned about the surgery failing and going through it for nothing. I also don’t want to rush into a PAO if it isn’t necessary.

I’m 30 and have had hip pain on the left side for almost 10 years now. I want a solution to this pain so badly.

Has anyone else been told their dysplasia is too mild for PAO?

u/jamieschmidt — 2 days ago

Lower back pain/ upper hip pain post PAO surgery?

Hey guys, I’m 8 weeks post PAO and have the worst lower back/ upper hip pain on my operated hip.

I’m meant to be full weight bearing on one crutch but the pain is so bad I can hardly fully weight bear and have to use two crutches. I only get the pain when trying to weight bear or bending to sit down.

I can’t tell if it’s nerve or muscle related 😩did anyone else have the same thing? Did it go away? Thanks :)

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u/Confident_Dream_1105 — 2 days ago

Do I have hip dysplasia or no?

Have been to two hip specialist. One said I do have hip dysplasia and the other said my hips are perfectly fine. I have pain in the back of my left hip constantly, so idk what to think anymore.

Any input is appreciated

u/Critical_Cow_5990 — 3 days ago

did anyones pain get worse after surgery??

hey yall it’s good to see most folks were helped a lot from the surgery but curious if anyone elses pain got way way worse after the PAO surgery—like so much it makes the pain I had prior seem like nothing.

I got my hardware out as soon as possible but it’s been almost 2 years and I still feel like my bone is sharp and ripping through my skin. I still have radiating pain and weakness and cannot get off my cane—which I did not have to use before the surgery.

I’ve had MRIs and obviously XRAYs since but I think I need to get an EMG which I’ve been trying to avoid. I feel like it has to be a nerve injury or entrapment. Is this a complication anyone has had?

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u/Critical-Moose2810 — 4 days ago

Pregnancy + Torn Labrum and Dysplasia? What helps before surgery?

Hello fellow dysplasia community. I'm 40 and after a lifetime of back and hip pain was finally diagnosed with a torn laburm, CAM impingement and bilateral dysplasia last month. I had just gone through a miscarriage and was hoping to try again when tearing my labrum. I have been using a walker since June (now August). A cortisone injection last month helped a lot but not 100%, and I'm still using a walker per PT to keep pressure off the joint. I'm mostly housebound and can't walk more than a couple mins at a time without a walker. I swim 15-20 mins daily and that's about all I've been able to do.

I was told by multiple surgeons I need a PAO + labrum repair + CAM removal. Hip arthroscopy surgeons won't operate on me. (I'm 21 degrees LCEA).

At 40 years old I still have "good" cartilage and "mild" arthritis so I'm not a hip replacement candidate.

The top PAO surgeon in the state says that I should try to have a baby before PAO due to my age & ovarian insufficiency diagnosis, and the fact that with his wait list + 6 months min recovery, it would be about 11 months before we could even try again.

The PAO surgeon also says PRP & stem cells won't help, PT only moderately helps, and that pregnancy will make all my symptoms worse!

I'm obviously totally crushed by this info. I'm already using a walker & can't imagine a year of worse pain, versus a year of surgery and recovery before being able to try and missing our window for a family.

I am wondering about women who have torn labrums and dysplasia and got through pregnancy. Did anything help? Did PRP or Stem Cells do anything for you? Is there hope for this beyond the PAO? I have also found one surgeon who is willing to arthroscopy on it but from everything I've read I am wary (he doesn't cut the joint or ligament but does remove part of the damaged labrum which I've read we need with dysplasia).

Thank you all.

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u/No-Suggestion-8878 — 6 days ago
▲ 9 r/hipdysplasia+1 crossposts

Mental health advice w OA

TLDR: has anyone gotten any counseling/therapy approaches that helped them with the mental aspect of this degenerative condition?

25F dealing with OA caused by hip dysplasia. I used to be very athletic even after undergoing two labral tear repairs. Over the years I’ve had more and more pain which has limited my ability to run and now walk or exercise. It’s accelerated drastically in the past six months and everyday is getting harder. I can barely walk five mins without being in pain and having more trouble with range of motion as time has gone on. I’ve done all the physio in the world and continue to keep up with it to no avail. I have an appointment with another specialist at the end of the month.

In the meantime, I’m struggling REALLY hard mentally. I’m having a hard time accepting my body degenerating and not being able to live the life I knew in my 20s.
I’ve been in therapy before but this is different. I find it really hard to talk about what’s happening to me and anyone I tell I just feel more and more misunderstood and get even more frustrated. Being in pain and leading to lack of sleep has caused me to get incredibly impatient and frustrated easily. I feel myself isolating myself from friends bc I don’t want everyone to have to cater plans around my inability to walk or be active bc it’s more mental effort for me and feel like a burden. I’m gaining weight bc I can’t exercise as much as I used to and becoming very insecure. I notice myself falling into destructive habits again. I don’t know what to do.
I realize I need to go therapy again but I want to approach it the right way so I don’t get even more frustrated. Has anyone had experience with this?

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u/swissmiss1910 — 6 days ago

Opinions on my xray

34 year old female. Have suffered from joint pain in my knees, legs, feet and hip area for a long time. I do have mild arthritis and hypermobile ehlers danlos syndrome. I came across this xray in my medical chart and was hoping for an opinion on whether or not it looks normal. I compared it to other pictures online and it looked similar to others with hip dysplasia. I appreciate any input!

u/F4deIntoYou — 5 days ago

PAO Round 2

Hey everyone! M(37) Had Scope + PAO Combo 6/22. I did pretty well, except for getting shingles two weeks after my operation but I'm healing well and walking without assistance for a good majority of the day. I'm about 7 weeks out and both my surgeons tell me I'm doing amazing... So amazing infact that we scheduled my other side for October 26th so just about 4 months apart. Has anyone done these back to back like this ? any advise before going into it (Besides getting the shingles vaccine 😂) ?

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u/Difficult-Manner6538 — 5 days ago

Do I have hip dysplasia?

When I was younger I went to a chiropractor who did some X-rays and said I have hip dysplasia (I’m not 100% if this is accurate because it was a long time ago). I never got the X-rays sent to me but I just went off of her word.

What makes me think I have hip dysplasia is I feel like my hips get in the way of moving my legs towards my chest. I physically cannot pull my thigh/knee up to my chest and when I do I can hear and feel a little pop/crack. I feel like because of where my hips are, my leg cannot move any higher because the bone is blocking it. It doesn’t feel like a muscle is straining, I only feel discomfort at the bone and no matter how hard I pull, it doesn’t move past a certain point. I’ve tried everything but I have a feeling it’s physically impossible to get my thigh to meet my chest.

Is this a sign of hip dysplasia or is it something else?

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u/archivedroses — 5 days ago

One month post-op PAO!

Hi everyone, just wanted to come on here and share my experience as I just underwent a PAO! I came to this subreddit before my surgery so I could figure out what to expect so I thought I'd do the same for anyone else curious!

I (18yo F) was diagnosed last September to have a hip impingement and many small, serrated labral tears, as well as a few bone spurs on the ball of my hip. I was in pain nearly every day due to a high-impact sport I participate in. In January of this year, I went to St. Louis and left with a date for surgery. Four weeks ago, I went through my procedure! If you're unfamiliar with a periacetabular osteotomy, my surgeon cut my hip socket off of my pelvis and repositioned it, screwing it into place with four large stainless steel screws. He told me my labral tears would scar in and not bother me anymore as they fixed the root problem. I went into surgery around 1PM and woke up around 6PM. I stayed the night in the hospital, completely drugged lol. I'd never even had an IV in before, so it was definitely a new experience. My nurses were all wonderful and very kind. I had to wake up a few times through the night, just taking medicines and vital checks. I got ice cream each time haha. That next morning they gave me a walker and crutches and taught me how to use both, particularly on stairs and getting in and out of cars. They also showed me the best way to use the bathroom, shower, and lay down. Around 11AM I was discharged and my parents drove me home!

The next two weeks were pretty hard, but I was naturally on strong pain medication. I mostly laid in bed and slept about as much as I could. Overall it wasn't too bad, and luckily I'm staying with my parents until I'm fully recovered. Crutches are exhausting and hard to adjust to, but I just got new 4-week xrays taken and have been cleared by my surgeon to start bearing weight on my leg! It's really great to walk again, it hurts a little bit but at this point my crutches are just for support. I'm starting PT in just a couple days to get a lot of the strength back in my leg, so I should be able to drive again within one or two weeks. (I had a right-leg PAO). Overall the experience isn't nearly as bad as I thought it would be. I've been off of pretty much all my medications for two weeks now other than Aspirin and Tylenol. I unfortunately can't return to my sport for a while, but I am super grateful to be recovering so well. I am guessing that I am above the average recovery rate due to my age and wonderful surgeon. Just wanted to share! Feel free to ask any questions in the comments!!

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u/PreferenceAdept2606 — 8 days ago

Feeling bad about my ability to exercise

I have congenital hip dysplasia, but I wasn’t diagnosed until my parents got concerned with how I started walking, so I was already diagnosed a little late. When o was diagnosed the doctor that had diagnosed me told my parents that I would “grow out of it,” so nobody ever bothered to attempt to treat me. I’m now almost 17 with my hips getting worse everyday because they were never taken care of. When I was younger I was able to run and play fairly easily, but gradually the pain and discomfort got so bad just walking around school is near agonizing. I’ve been living a very sedentary lifestyle for most of my life because of this which I’ve always felt really bad for. Right now I’m currently in a health class, so I’ve been hearing a lot about how bad a sedentary lifestyle is. I’ve started becoming very insecure in my ability to exercise and move in general and I think I just need other people like me to help validate me a little.

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u/mumb33 — 6 days ago
▲ 3 r/hipdysplasia+2 crossposts

27M recently diagnosed with hip impingement — surgery now vs. conservative treatment?

Hey everyone, I’m a 27M and was recently diagnosed with hip impingement based on an X-ray. I’m still pretty active and regularly strength train and walk.

I’m trying to figure out how to approach this long term. I’ve been considering whether it makes sense to address it surgically while I’m young and active versus continuing with conservative treatment and only considering surgery if things get significantly worse.

One thing I’m unsure about is whether hip impingement tends to eventually lead to surgery anyway, or if plenty of people are able to manage it long term with PT, strengthening, mobility work, activity modifications, etc.

For anyone who has dealt with hip impingement:
Did you try PT/conservative treatment first, and how successful was it?
If you eventually had surgery, what made you decide it was time?
Anyone wish they had surgery earlier—or wish they had waited longer?
How are you doing now with lifting, sports, running, or other activities?

I’m obviously going to discuss this with an orthopedic specialist as well, but I’d love to hear some real-world experiences from people who have gone through it

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u/Sad_Aardvark_2225 — 9 days ago

Cartilage Loss & PAO

Can you share your experience or knowledge of having cartilage loss (I have 7-9mm loss in one mirroring area on ball/socket), and getting a PAO? Surgeon said I will need a THR eventually but a PAO may save me 5-20 years, but it may not work at all. He says its 50/50. Would like to save the hip but wondering if it's worth the trouble

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u/Quiet-Variation-1752 — 9 days ago

Hip Dysplasia Diagnosis; Looking for Opinions

As a disclaimer I am not seeking legitimate medical advice but rather looking for the opinion of people that faced a same or similar issue.

I was born with my right leg appearing to relax inward or outward compared to the other so they tried corrective shoes with a bar in between for me to wear while in the crib assuming I was either pigeon toed or that it was an ankle issue that could be corrected (ohh the 1980s), which did not work. I totally skipped crawling and was delayed learning to walk (which is common with congenital dysplasia).

As a teen I experienced more noticeable pain/discomfort/movement difficulty when I had to run for gym class. The doctor diagnosed it as a short tendon, so I had half-assed physical therapy for a month to 'stretch it out'.

Fast forward to adulthood (now 30s) and the pain/discomfort has become much more frequent and movement more difficult, such as bending down, crouching, or walking/standing/sitting for long periods of time. Finally this year I got a diagnosis of congenital hip dysplasia, went to physical therapy for 6 weeks to strengthen and learn pain management, but when I got an x-ray done there was no joint abnormality (which I thought was key in hip dysplasia).

So, has anyone else gotten this diagnosis without a visible abnormality in their x-ray or could I have gotten *another* misdiagnosis? I take Dr. Google with a grain of salt but there are other ailments that come up with similar symptoms, but none of them fully 'look' like me in order to bring this up with my doctor more clearly.

Again, I'm only looking for opinions based on anyone's experience with leg issues, regardless of if it is from an injury or since birth. Thanks!

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u/MannequinDoll — 9 days ago

Active person who can’t be active now

I was diagnosed with a hip deformity in October as well as a torn labrum after 10 months of tests and injections. My doctor said I need a reverse PAO. Only issue is, I’m 39 and my husband and I were trying for our first child. Since my clock is ticking, I was told to try to get pregnant first, so I’ve put the surgery on the back burner and have been living with the pain. I’m a fairly active person and it’s driving me crazy that I can’t workout and I’ve lost so much muscle this last year. Has anyone had experience where you’ve had to delay surgery and what have you found works exercise wise that helps prevent the atrophy? Also, has anyone had a successful PAO in their early 40s? I know not all doctors perform them and start to recommend hip replacement which I really want to avoid.

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u/Medium-Custard-5129 — 8 days ago

Hip dysplasia and running?

I started running for the first time since my 20s (now in early 40s) this past Spring. I alternated yoga, stretch/strenthening, and running, and deeply appreciated the advice here of never running back to back days for the first few weeks. Felt like things were going well… and then my back/hip started to hurt in a way I couldn’t fix myself (pretty good at diagnosing and rehabbing basic injuries).

Made an orthopedist appointment and was diagnosed with hip dysplasia. I’ve been in PT all summer and just got scheduled for an MRI bc progress isn’t really happening.

Anyone else have hip dysplasia and able to jog/walk regularly? I am so discouraged and was feeling so fantastic before! My new exercise routine was great for my mental health and executive function but now instead of continuing it over my summer off (teacher w 2 kids at home), I am stuck doing PT exercises and making no progress.

Just looking for any similar experiences and a lil pep talk from anyone who has been here and kept up running!

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u/Bamburguesa — 11 days ago

Any post-op tips for dealing with a PAO

Im 15M and just got released from the hospital this evening. Just for context this recent spring I played varsity lacrosse as a freshman. During one practice I came home and my hip has been hurtin so I thought nothing of it thinking I was just sore. Then after about a week or so the pain ramped up so I went to the doctors to get everything checked out. They said everything was all good and I should just see the athletic trainer and do some PT. I did that for about 2 weeks or so and didnt notice anything getting better so I went to a different doctor to check up again. Turns out I got misdiagnosed and I completely tore my labrum.

After receiving that news I also was told I had severe hip dysplasia. The same doctor told me I should get a hip arthroscopy. I went to 2 different doctors and they told me I should only get a PAO because if I only got the arthroscopy my hip dysplasia would just cause it to tear again.

With some research we planed to do only a PAO and it was scheduled for August 6th (2 days ago). By the time I had my surgery planned i was still in the middle of my highschool lacrosse season so I took some medicine and played through the best I could. Then after my highschool season finished I went to play for a club lacrosse team during the summer because im passionate about the sport.

So by the time August 6th came by I went under and had the surgery. Pre-op I did have an epidural catheter and a nerve block put in. But when I woke up I was in excruciating pain, easily 10/10 pain is was genuinely the worst pain I’ve ever felt. After a while my medicine kicked in and the pain went down a lot. While I was still under anesthesia my surgeon told my parents my hip was much much worse than he expected and that because I was still using it my mus stretched and basically the only thing holding my hip in the socket was the capsule.

The first night was not horrible due to the nerve block and all the drugs and not to mention the bad sleep. But the second day with PT starting was real humbling. I was lucky enough to get released the third day and to be clear today has been the worst day out of all of them. They have taken me off of every iv and am only on oral medication and also they are giving me lower doses.

Right now in my room I have a recliner and my bed to lay down in or to sit in so I kinda go back and fourth. But no matter how I lay or sit im always in pain. So please if anyone has any tips and stuff to do to reduce pain or to get comfortable please let me know.

https://preview.redd.it/s9fwx6rsl8ih1.jpg?width=2968&format=pjpg&auto=webp&s=af21f8a4ac345d560f6010eaeca87299fd0dd3b0

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u/PandaSpecialist4220 — 12 days ago