u/ESCAPED_WOLF_17

lgmd2b/dysferlinopathy/ eculizumab c-5inhibitor

Hi i,ve lgmd2b recently came across a news from UK they have given a patient aged 18 eculizumab he was diagnosed with lgmd2b and needed assitance for ambulation before the treatment his CPK level was 52000 after taking 900mg eculizumab for 4 weeks his CPK level dropped to 1200 and they did 13months follow up after that during this time he gained muscular strength and was even able to JOG AND CLIMB STAIRS INDEPENDENTLY ....if anyone wants to read full report search on google ( eculizumab lgmd2b treatment) and i also want to ask if anyone knows this on this SUB ALREADY and has tried this therapy before or not ?

Hi i,ve lgmd2b recently came across a news from UK they have given a patient aged 18 eculizumab he was diagnosed with lgmd2b and needed assitance for ambulation before the treatment his CPK level was 52000 after taking 900mg eculizumab for 4 weeks his CPK level dropped to 1200 and they did 13months follow up after that during this time he gained muscular strength and was even able to JOG AND CLIMB STAIRS INDEPENDENTLY ....if anyone wants to read full report search on google ( eculizumab lgmd2b treatment) and i also want to ask if anyone knows this on this SUB ALREADY and has tried this therapy before or not ?